Janie - FixHepC

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31 May 2016 at 12:29 pm in reply to: End of Treatment day #18104
Ariel
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- Guardian Angel
@ariel
Pat1 SVR12 I am stoked for you my friend
Celebrating with you for sure
We are walking miracles thanks to a leap of faith and a damned fine team at FixHepC
I’m sending you a big glassy perfect tube ride for this one no splashing just all curves and gorgeousness

Ariel
31 May 2016 at 9:55 am in reply to: Ariel takes the Plunge #18092
Ariel
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- Guardian Angel
@ariel
SVR8
Thankyou James and friends
Feeling stoked as a mermaid dancing with Steve Tyler.
My journey began with him and I rekn I will save the last dance for him too.

“…….do you see a bluer sky now
you can have a better life now
open your eyes
cause no one here can ever stop us
they can try but we wont let them
no way
maybe you & I
could pack our bags & say goodbye
and Fly Away From Here” Steve Tyler

Ariel
31 May 2016 at 6:54 am in reply to: Ariel takes the Plunge #18082
Ariel
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- Guardian Angel
@ariel
Ooops
The paperwork says ALT <9
That's obviously the lowest end of the assay range at Clinical Labs
The PCR is read and on the way later this avo and I am off on a mini break but will blog my result and try to pop by and visit people here in their travels too x
A busy Ariel xxxx
28 May 2016 at 2:22 am in reply to: FixHepC – Party Playlist #17937
Ariel
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- Guardian Angel
@ariel
Ty Hazel
And here’s Ziggy
28 May 2016 at 2:14 am in reply to: isaing4 Twinvir story #17936
Ariel
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- Guardian Angel
@ariel
Fantastic Isiang, looking forward to your next blog yay! I’m sure you are feeling great. You have been a wonderful support to others too I wish you the very best for our HepC free future
Splashes from Ariel
28 May 2016 at 1:37 am in reply to: Sorry, but Australia is going to have to be Geoblocked #17933
Ariel
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- Guardian Angel
@ariel
Don’t be sad people and thanks for the support to those o/s for your kind words to us in Australia and yes here it is again: (louder) EVERYONE HAS NOT GOT THE PBS LIKE A BAG OF LOLLIES HANDED OUT IN AUSTRALIA WE NEED GENERICS TOO. Ty.
Now I have said that for the hundredth time…..

Re this internet access issue, I hinted at it in my reply when I said VOIP and mentioned Netflix, ie; there are ways around everything it’s a matter of spending time working it out.
Beaches virtually explained how without listing the names of the best proxys, VPNs.
We can get around this.
Aussies get someone to assist you if necessary because this is our forum yes we deserve access. There’s information out there available to non IT geeks with how to info.
Some charge a monthly fee some are free. You can stream just about anything from just about anywhere.

And then hope that we don’t get into trouble for breaking some silly law. Covering James back is most important. I urge us to all be mindful of his integrity and be circumspect.

As to this interesting question “who complained”
It could easily be anyone on this forum; reality check. I’m well aware of the risks of this forum. It’s fantastic yes, but it also contains personal stories and I recall the times very lovely people have been hassled just for no reason by other members. So who complained? Well likely an Australian. But we don’t really know who is behind the words and it could be anyone. It could be Gilead. It could be a Govt run Org. We don’t know

I feel the main thing to remember is that we need to be respectful of Dr J.

Ariel
27 May 2016 at 1:45 pm in reply to: Living with hepatitis C vs legal framework #17905
Ariel
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@ariel
Rohcvfighter excellent and I will write my answers during the weekend
Ty and its not emotional for me and I have had a rough trot until finding FixHepC ty this is a great idea
Cheers from Ariel
27 May 2016 at 1:21 pm in reply to: Ariel takes the Plunge #17902
Ariel
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- Guardian Angel
@ariel
Thanks Beaches
I’m feeling tired at times but only from my peginf damage so I don’t count that.
Mentally I think my report card has a + beside my letter score now.
Physically my upper arm strength is paddle fitter by say 75%
Core strength is at the stage of “oh really is it 11.30? I paddled out at 9; oh no I better leave I only had an hour to spare!”
Skin is clearer and fresh looking but apparently dehydrated my GP noted
What! Not more water! I just drank enough to get across the Simpson gimme a break! Okay so I bought a moisturiser and I am having microderm on my neck for damage from peginf anyway. That’s supposed to stimulate the cells but at this age gawd knows.
Its on Medicare because its not cosmetic it’s at a doctors and for damage. Yes I get a red neck from it (redneck haha, generic rebels)
My digestion is great. Some resetting of bowel routine post EOT intermittent for a fortnight or so.
Slept a full day once since EOT. Thats it!
I think this week is my best so far.
The first fortnight post EOT was my most tricky and I am sure others would be agreeing after all these meds if you are not on riba have a relatively short half life
We are blessed
Let’s hope the good work in Oz can continue and that our excellent Doc James is about to enjoy some rest this weekend!
TY FixHepC
Xxxx
Slapshes From Ariel
Will also pm you Beaches
27 May 2016 at 12:32 pm in reply to: Ariel takes the Plunge #17896
Ariel
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- Guardian Angel
@ariel
Love it Pat1
See Brian Wilson was not right when he wished they’d all be Californian Gals we Aussie SHIELAS (!!!) are pretty darned awesome
Go the good livers xxxx yay
27 May 2016 at 12:11 pm in reply to: Ariel takes the Plunge #17891
Ariel
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- Guardian Angel
@ariel
I’m 8 weeks since EOT and have my LFTs in from this morning
ALT 9
Yes NINE
I am not a teenager but my ALT is 9!!!!!
Other markers same so low it’s great
AST is 17 GGT 15
I won’t relapse, no way! How could I when my levels are consistently fab.
I will blog my PCR RNA which I am expecting mid week.

I’m hoping my blog inspires people globally because we Aussies are not going to have access to this our own diary! Legals and evils. PS Aussies copy your diary blog into a word doc just in case you can’t find a way to high jump the bar

That won’t stop us shouting from the rooftops we are Aussies Oi Oi Oi
Hear us roar!
27 May 2016 at 11:59 am in reply to: Sorry, but Australia is going to have to be Geoblocked #17890
Ariel
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- Guardian Angel
@ariel
Okay so I’m using VOIP anyway as I refuse to be stuck with STD rates just because of where I choose to live.
Hint. Netflix yeah I stream that
Anyway
I’m going to draw attention to the blogger from Oz in this thread who has not got PBS help, Woobia. Thanks for your honesty Woobia

I’m really over the world thinking that every Aussie who has HepC got a magic script and meds

That is not what’s happening here
Yes some people have got the pbs meds but NO many many people wait.

We need this forum
We also need access to generics here I believe
It’s very early days and PBS is $$$
Okay enough
I’m going to my blog Ariel Takes The Plunge and bringing good news to the table
I wonder how fellow Aussies who have blogged like myself in the hope of inspiring other people to seek tx feel about our blogs when we wont actually see them ourselves
Think of it as Global Community Service xxx
26 May 2016 at 12:42 am in reply to: My Final VL and time on treatment #17782
Ariel
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- Guardian Angel
@ariel
Congratulations Rowan
Ty for blogging your update
Yes it seems that we all respond at different times to these new meds I hope your partner gets UND soon too
Happies to you both from Ariel
26 May 2016 at 12:39 am in reply to: compounding bymyself #17781
Ariel
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- Guardian Angel
@ariel
Welcome Ray
Yes Gaj has sent you in the right direction
Gaj there were some pics Mike posted I think of how to ? The actual measure instruments?
I wonder if we can find that in the site here somewhere to help our new friend
Good luck and great treatment to you Ray
Ask any questions because there are people to help you here
Happies to you from Ariel
26 May 2016 at 12:35 am in reply to: French govt announces universal HCV treatment #17780
Ariel
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- Guardian Angel
@ariel
Thankyou very much Vororo
I’m liking Marisol Touraine speaking up about tx for all. My french is okay for reading not so good for parlez. But I get the articles
Interesting that these all coincide with this weeks WHO Assembly
Ty for this excellent info
Alors! Tx pour tout la monde!
25 May 2016 at 3:09 pm in reply to: Who is the Furthest Away Generic Rebel, Stand and be Counted? #17751
Ariel
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- Guardian Angel
@ariel
So Ken you too are a muso…well howdeedoodee from a stringy here. I always said this forum was a secret jam sesh.
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