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  • 14 April 2019 at 3:30 am in reply to: Sound Therapy for Tinnitus #29130
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    • Guardian Angel
    • ★★★★★
    @sonix

    I would theorise that the brain trains itself to block out tinnitus anyway. My tinnitus is fairly pronounced but often I don’t notice it except in an exceptionally quiet location, or while reading something about tinnitus. :S :lol:

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    12 April 2019 at 4:35 am in reply to: Sound Therapy for Tinnitus #29122
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    • Guardian Angel
    • ★★★★★
    @sonix

    There’s an old thread here where the owner of HushTinnitus goes to great lengths to explain what it does and doesn’t do, particularly that he doesn’t claim it’s for everyone, or that it’s a complete cure. I decided against trying it because, although the website seems active and functioning, he reportedly hasn’t responded to emails since 2014. https://www.tinnitustalk.com/threads/hush-tinnitus-sound-therapy-experiences.2470/

    Also on the same forums there is a free offering from https://tinnitusmix.com/ . There is a 41 page (and still going) thread talking about it which starts off with some really cynical replies but seems to have quite a few supporters once you get past that. https://www.tinnitustalk.com/threads/i-invented-a-sound-that-knocked-out-my-tinnitus.33001/ . I’m downloading the 765MB .wav file now to try it out.

    Before I start that, I plan to try Gingko Biloba tablets for a few weeks. They are reported to have some effect for some people.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    11 April 2019 at 9:20 am in reply to: Sound Therapy for Tinnitus #29116
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    • Guardian Angel
    • ★★★★★
    @sonix

    Has anyone tried these treatments? I’m not keen on paying $699 for the SoundTherapy package but under $30 for the hushtinnitus sounds worth a shot. I tried their trial test and the results seem to match my knowledge of current condition.
    I’ve worked a lot of my life doing sound for loud rock shows so I don’t think it’s related to HCV treatment but tinnitus is bloody annoying and can definitely affect mental state, particularly stress and anxiety levels.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    7 April 2019 at 5:58 am in reply to: Gaj – gone but not forgotten #29096
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    • Guardian Angel
    • ★★★★★
    @sonix

    Hi DrJames, great to see you’re carrying on with your precious work. You are indeed one of the good guys too. ;)

    Post treatment I’m definitely feeling better in a few ways but still suffering from old bloke maladies (64 now). Less muscle cramps, shivers/flushes, and skin is much clearer with almost none of that seborrhoeic dermatitis I used to have.
    I still have a level of chronic anxiety but it’s less than before. A more comfortable living situation helps that I’m sure. Had a bout of depression last year after I had to put my cat to sleep because of a nasty cancer but over that. A virus around new years almost flattened me with a subsequent bronchitis taking 2 courses of antibiotics to clear. I think it took a couple of months to recover from the antibiotics!
    Eating well (ish), swimming, walking, cycling regularly and hardly drinking any alcohol. Also haven’t had a cigarette for 6 months after taking up vaping. I highly recommend vaping as it’s the only thing that worked after over 40 years of smoking. Overall a fairly positive outcome.
    I don’t recall if I had a test after SVR24 so I might ask for one when I go see a GP on Tuesday for a general health checkup. I think it’s about 3 years since end of treatment.

    Thanks for asking and it prompted me to actually do a health stocktake. I hope the skies are clear and life is rosy for you too!

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    7 April 2019 at 2:49 am in reply to: Gaj – gone but not forgotten #29094
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    • Guardian Angel
    • ★★★★★
    @sonix

    I haven’t posted much here since Gaj left us, but I recall he was one of the people who made this place a gathering of friends not yet met rather than a bunch of patients. I often entertained the idea of catching up with him to go fishing but sadly that was not to be.
    He was definitely one of the good guys.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    30 May 2017 at 4:08 am in reply to: Greg Allman dead at 69… #26217
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    • Guardian Angel
    • ★★★★★
    @sonix
    Sven wrote:

    Greg Allman, one of the most iconic front men of the blues and rock band Cream…

    Erm, you might like to edit that to say “Allman Brothers” rather than “Cream”.
    A sad passing. I was a big fan.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    9 September 2016 at 6:04 am in reply to: Epclusa is up for PBAC consideration in November #22864
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    • Guardian Angel
    • ★★★★★
    @sonix
    tweakmax wrote:

    tats fast!

    It took nearly a year for the current drugs to go from “under consideration” to be available on PBS.

    I have a mate who did clinical trial for what is now known as Epclusa well over a year ago. He was cured.

    Good to see more options becoming available, especially more effective and cross genotype ones.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    31 July 2016 at 11:42 am in reply to: Commitment to Cure forum #21724
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    • Guardian Angel
    • ★★★★★
    @sonix

    Sovaldi costs way less than $1400 to make. I bought sof for $AU1250.

    Server not found

    Firefox can’t find the server at http://www.committedtocure.org.

    :dry:

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    29 July 2016 at 4:59 am in reply to: Chlorcyclizine #21569
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    • Guardian Angel
    • ★★★★★
    @sonix

    Just did a quick search about this. There are some serious possible side effects including hallucinations that you don’t realize you’re having, a la Datura (which I had once as a silly teenager and don’t recommend). Also potentially abused by opiate users to increase effects.
    DO NOT take this without consultation with your doctor.
    It does not even appear to be registered for use in Australia.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    29 July 2016 at 4:19 am in reply to: Supplements – Protein Powder #21567
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    • Guardian Angel
    • ★★★★★
    @sonix

    Hi and welcome!
    When you say “Hepvir” I hope you mean Hepcvir-L (sof/led) and not just Hepcvir which is plain Sofosbuvir and needs to be used with another drug.
    As for your protein powder, I’d look further into what “enzyeme blend” means but probably safe. IMO, and supported by other reading on the web, you are much better getting protein from a good diet than by taking supplements.

    Best wishes for a successful treatment.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    26 July 2016 at 6:55 am in reply to: Harvoni – decline of sales in U.S.?! #21397
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    • Guardian Angel
    • ★★★★★
    @sonix

    It could mean more product sold at lower prices. I’d be interested to see sales figures for countries with government subsidies.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    16 July 2016 at 2:35 pm in reply to: Hard to treat Gt3 – Another stage of the journey #20975
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    • Guardian Angel
    • ★★★★★
    @sonix

    Gaj, sorry to hear of the return. You have been such a positive influence here, it’s not fair that you need to keep on fighting. Best wishes for a final solution.

    @splitdog     – crossed fingers for you too, hope the next one is the charm.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    13 July 2016 at 11:35 am in reply to: Lynne’s end of treatment #20893
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    • Guardian Angel
    • ★★★★★
    @sonix

    @Stew-H SVR12 is 12 weeks post end of treatment.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    10 July 2016 at 5:04 am in reply to: HCV & LOW TESTOSTERONE #20765
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    • Guardian Angel
    • ★★★★★
    @sonix

    Read this a while back – Boosting testosterone doesn’t do much for flagging sex life or low energy, research finds
    Although if you read the source quoted in that article, it says improvement was noted in sex life, but not overall vitality – http://www.nejm.org/doi/full/10.1056/NEJMoa1506119#t=abstract

    Damn reporters should read what they are reporting on.

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    24 June 2016 at 12:29 pm in reply to: Fitz starts REDEMPTION 3 Trial #19876
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    • Guardian Angel
    • ★★★★★
    @sonix
    Sven wrote:

    So I’m just wondering, any advice for the rookies here? :)

    You’re taking Sof/Led, right? Pretty easy, main thing is not to take antacids close to dose time as it needs acid in your stomach to work best. I took Sof/Dac which is a bit more fussy with foods and enzyme interactions, not a concern with Sof/Led.
    Otherwise, normal healthy living is the recommendation. A good diet, exercise, a bit of sun and a positive outlook will get you there. Success rate of the treatment is amazingly high so don’t consider failure. I was so confident of attaining SVR12 I was about a week late actually getting the test! ;)

    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

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