Can hep C cause strange symptoms?

This topic has 137 replies, 31 voices, and was last updated 8 years, 11 months ago by Joy.

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10 December 2015 at 9:00 am #5786
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Chejai,

I agree with zhuk. Now that the opportunity is available focus on the hep first and cure that. Then see what symptoms are left.

G

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
10 December 2015 at 10:41 am #5792
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
I agree with the idea of auto immune. But from the other side hepc can cause auto immune disease because it is the immune system that attacts the liver cells. Who knows what other it may attack whenever it thinks that virus replicate.

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
10 December 2015 at 11:03 am #5794
berrinice
- Topics: 10
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- Total: 132
- Guardian Angel
@berrinice
My friend is on dialysis with CKD cause by cryoglobulinemia- a dangerous protein to the kidneys caused by hepc virus. He does have severe cirrhosis and had his stomach drained of fluid about 5 times. Its been a year since being on dialysis. I thank god everyday.
14 December 2015 at 9:16 am #6215
Chejai
- Topics: 5
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- Total: 272
- Guardian Angel
@chejai
That’s sad about your friend berrinice. My brother has HCV too and he has cirrhosis, in and out of hospital with infections from the fluid buildup, he’s not good.
I’ve had my consult today and talked with Dr Freeman about some of these symptoms. So having the tx will be the only way I’ll end up knowing how much of what’s happening to my body is from the Hep C or just me having other issues.

I don’t expect to feel 100% again BUT I’m really hoping that I feel a lot better than what has become ‘normal’…

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
15 December 2015 at 3:12 am #6307
berrinice
- Topics: 10
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- Total: 132
- Guardian Angel
@berrinice
I think my friend’s liver is too far gone for any benefit from the medicine. It could cause liver failure. Chejai you have hardly any liver damage. You will be great after the medicine. I used to sleep 10 plus hours. Now cured I can’t sleep more than four or five hours. So very happy too, for no apparent reason. Beg, borrow or steal the money, its the best investment you will ever make. kindly
15 December 2015 at 8:13 am #6328
Chejai
- Topics: 5
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- Total: 272
- Guardian Angel
@chejai
Yeah berrinice I suspect the same for my brother. He is in NSW and I’m in QLD so I can’t help him beyond talking sending info. I gave him all the printouts from this site – genotype recommendations, GP Cheat Sheet etc. His DR said she won’t do anything because it’s ‘illegal’! He’s been waiting all year to get into the public Liver clinic and appointment isn’t until May 2016 – useless! They just recently told him he has a 50% chance of surviving the next 2 yrs. He is in a brain fog most of the time and gets overwhelmed and confused with all the info – I have trouble myself

Paperwork is done and $$ transferred yesterday so just waiting for the meds to arrive!
Have a last celebratory drink on xmas and then on the wagon.

I would love to at the least be rid of the horrendous fatigue and some of the relentless ‘body’ pain I suffer! My problem is insomnia rather than sleeping too much. Wow, to be happy for no particular reason – that sounds awesome

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
16 December 2015 at 10:25 am #6423
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Chejai, congratulations for taking control of your health – happiness is on its way.

I’m on day 64 of 84.

Symptoms that have practically disappeared include anxiety, depression, dry eye, broken sleep, frequent urination, poor digestion, chronic joint & muscle pain, and last but not least – hot flushes. Very very happy bunny.
16 December 2015 at 12:58 pm #6431
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
Hi Joy,
Did you have dizziness?
I have a lot of symptoms, I hope mine alleviates a little bit.

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
16 December 2015 at 5:31 pm #6459
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Great to hear, Joy…and what a revelation that all those symptoms seemed to be hep-causation. Gotta be a great relief for you

Weirdly enough, I have just about every one of those too lol…I guess time will tell huh!

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
16 December 2015 at 8:06 pm #6467
Henry
- Topics: 1
- Replies: 9
- Total: 10
- Acolyte
@henry
Been a while since I’ve shared. 24 days into led/sof. THANK YOU M! Just got labs back and my ALT (SGPT) P5P -23. Alanine Amino Trans dropped-18. Waiting on viral load results. Normal liver function!

Last week I had major joint pain. Knees and hips. I attributed it me stopping my daily workout because of headaches. Had a dull headache last Sunday that progressed to an almost migraine level for 3 days. In that time an old hand injury ached and my joints were stiff. Maybe because of my sleep schedule, I can’t seem to get more than 4 hours of sleep at a time. My dreams are absolutely CRAZY! It’s not too bad but it would be nice to get a good rest in.

All in all I feel like anew man. I can’t fully describe it but I feel like the weight of the world is off my chest. I’m sure it’s all in my head but a part of me feels like my body is no longer at battle. Maybe TMI, but my urine is normal with no foul smell. Sorry for that gross detail but I wanted to share if anyone else had that result.

For the first time in so many years I am looking forward. I always assumed I would die before my time so I stopped looking and planning to for the future. Even if this treatment didn’t work, I think the act of fighting for myself gave me new life. It’s SO IMPORTANT! I feel like I am worth something again. It still kills me inside to think of all those that feel like they will never get cured because of their economic status. Hope is the best drug! I want everyone to feel it.

Thank you M and thank you fixhepc. If I hadn’t stumbled across this forum I would still be hopeless. I wish I was better with words to describe how greatly I appreciate this new hope.

Sorry for the wall of text, just keep fighting!
16 December 2015 at 8:57 pm #6468
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Henry!
Good to hear from you!!
I am soooooooooo happy for you.
Great labs! Are those 4 week results? I’ll bet you will be <15 or close. Maybe even UND! I was lucky-just a dull headache & crazy dreams for a few days. Sleep is iffy, but when I get my normal 6-7 hours, WOW! I will have my 8 week labs today or tomorrow-day 56.
Glad to have been able to help.
Stay in touch.
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
17 December 2015 at 12:42 am #6484
zhuk
- Topics: 5
- Replies: 543
- Total: 548
- Guardian Angel
@zhuk
Awesome news, Henry! Great to see those normal numbers, for the first time…all the best for your VL results.

You make a great point on the mental aspect – a life lived with a view to not making plans can only be one half-lived…clamping down on your normal expectations. The lack of hope.. Its a quantum leap to consider that we might have a healthy one stretching into the future, isn’t it? Amazing when you think about this mental straightjacket we’ve all been wearing.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
17 December 2015 at 2:51 am #6488
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Enkel wrote:

Hi Joy,
Did you have dizziness?
I have a lot of symptoms, I hope mine alleviates a little bit.

No Enkel, I didn’t have dizziness, just some brain fog during the first few weeks. How about you? When did you start treatment? Have you noticed any improvements?

Henry it’s so good to hear your news, you really do sound like a new man.

‘Mental straightjacket’ Zhuk – very apt description!
17 December 2015 at 3:59 am #6493
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
Wow Joy that’s fantastic! Good for you being on the homestretch now 20 days to go!

Having all those symptoms for so long it would be great if it ends up being Hep-related. Oh, especially those hot flushes/chills I get.

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
17 December 2015 at 4:12 am #6496
Chejai
- Topics: 5
- Replies: 267
- Total: 272
- Guardian Angel
@chejai
It’s great to hear from you Henry. Sounds like your results are great less than a month in. I already have CRAZY dreams so hoping that doesn’t get worse hmy:

Certainly agree with you about suddenly seeing a future before you that you never planned or expected. I would never have thought I would get this opportunity, I didn’t believe the ‘just wait’ routine from the Specialist over the past few years was going to deliver. Also, learning that a lot of other ‘conditions’ I have may in fact be from the virus and therefore they will clear too. I would just love to wake up not in extraordinary pain and feeling like I’ve been run over in my sleep – so sick of starting my days like that inch:

Hope things continue on the upside for you Henry

QLD Australia ‚òÄÔ∏è
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
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