Dan's Twinvir story

This topic has 360 replies, 38 voices, and was last updated 7 years, 8 months ago by LondonGirl.

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30 December 2015 at 10:56 pm #7586
Dan
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- Guardian Angel
@dan
This is what my doctor told me at NHS 8 weeks, but I feel that I need 12 or possiblity 16.

I have reflux and diagnosed with HP helicobacter pilory. This could interact with the treatment. I will see the results next week and make a decision after that.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
30 December 2015 at 11:26 pm #7587
darbara
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- Total: 172
- Guardian Angel
@darbara
Dan wrote:

Darbara

My BP is fine, although it fluctuate from low norm to high norm.

I had my dizziness before tx as well, but felt much better. At the moment it is very difficult to get out of the house.

Darbara are you on original Harvoni?

yes got it for 12 weeks from the state, completed 3 now so 9 more to go.
Original or generic are the same so dont think about the difference

Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
30 December 2015 at 11:52 pm #7588
Dan
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- Total: 203
- Guardian Angel
@dan
I just thought that there are no side effects at all on Harvoni. Did you ask your doctor about the dizziness?

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
31 December 2015 at 1:11 pm #7641
darbara
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- Total: 172
- Guardian Angel
@darbara
No.
Harvoni and Twinvir are no different. My dizziness comes and goes. Its related to the elevated BP that I have since starting on Harvoni. The meds do help but sometimes Harvoni just takes over.
Harvoni effects each person differently. There are sides but lesser when compared to ribavrin.
The common symptoms are tiredness, headache, the extras may vary like dark urine, chest pain, elevated BP, Dizziness, shortage of breath, insomnia, diarrhea, muscle pain, itching, dryness in lower legs and feet, ankle and feet swelling, eczema, pitting edema…
Gilead just mention 3-4 of the above so lets not believe it all what their sales brochure says.

Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
4 January 2016 at 4:27 pm #7948
Dan
- Topics: 6
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- Total: 203
- Guardian Angel
@dan
Day 33

Got some of my blood tests back.
Antibodies test, kidney and liver all normal.
Alt 33 AST normal.
FBT- white cells count is raised
Platelets is down 145.

Still waiting for VL result.
Lymph knots in the neck are enlarged, possibly due to eczema. Started antibiotics 2 days ago

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
4 January 2016 at 4:35 pm #7949
zhuk
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- Guardian Angel
@zhuk
Good figures there Dan! sorry you’re having complications due to your ezcema. Hope the AB’s sort it out.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
4 January 2016 at 4:43 pm #7950
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Thanks zhuk. I hope so too, plus will restrict what I eat from today. Soups and rice

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
5 January 2016 at 4:41 pm #8038
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
Got my results back today.

Raised eosinophils.

Hep C – present 12 iu.ml 1.08

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
5 January 2016 at 4:46 pm #8040
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
Is it < 12? Or 12 iu?

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
5 January 2016 at 4:58 pm #8042
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I didn’t see the papaers, this is what the GP’s secretary told me. She said 12 iu.

I’m planning to go later and ask for a copy.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
5 January 2016 at 5:01 pm #8043
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
I don’t think that 8 weeks will work, so I need to take full 12 weeks and posibly and another 4 weeks on top.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
5 January 2016 at 5:02 pm #8044
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
She does not know to interpret it. It should be <12. Meaning negative or und.

there is no qualitative test to measure or quantify from 12 to 45. Qualitative just have two values detect or no detect

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
5 January 2016 at 5:24 pm #8046
darbara
- Topics: 6
- Replies: 166
- Total: 172
- Guardian Angel
@darbara
I think 12 weeks is the norm or then 24. The first test should be after 4 weeks on treatment not 2.

Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
5 January 2016 at 5:28 pm #8047
Enkel
- Topics: 16
- Replies: 293
- Total: 309
- Guardian Angel
@enkel
2 and 4 is recomrnded.

I am 100% certain that vl 29 at one week goes negative at two weeks. It should be <12.

Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured
5 January 2016 at 6:46 pm #8055
Dan
- Topics: 6
- Replies: 197
- Total: 203
- Guardian Angel
@dan
She said that the virus is present. I’ll try to get a copy later on today and report here.

This test is after 4 weeks, not 2 weeks.

Gen 1b, F1-F2. Naive.
Started Twinvir tx on 2 nd of December 2015 for 12 weeks.
Starting VL 400000, Alt 49/AST 44
1 week VL 29, ALT 44/AST 30.
4 weeks VL 12, ALT 33, Platelets 145, all other tests normal.
7 weeks VL Detected, ALT 28, all other normal
8 weeks UND, 12 week UND, 24 week SVR UND
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