Best of luck tomorrow at the doctors Dan,
In the last few days I get few hours here & there of more energy & sense of better well being, kind of “calmness”, but it does not last , usually followed by the more familiar fatigue & foggy brain.
This is a positive change from experiencing only fatigue & fog, now there is some brightness coming through from time to time , like sudden blue sky appearing from behind heavy dark clouds….& then it vanishes again,

Hi Dan, sorry to hear about your skin problems, I have eczema/allergies myself, it’s in the family.
Completely agree with London Girl’s advice. I have also found pure Aloe Vera gel – I keep in the fridge – mixed with a few drops of Lavender oil and Chamomile Essential Oils – very soothing and light, not greasy, my Pop loves it, helps me and my son when we get it too.

Very important to buy Pure Essential Oils and not Fragrant oils – they do not have the therapeutic chemical properties, in fact fragrant oils would make you worse.

Another soothing thing is Organic Chamomile tea, make a cup or pot of tea, let it cool and dilute with more cold water and soak a flannel/wash cloth and place it over your face or other areas for several minutes. If you have a bath, you could throw a couple of tea bags in with some Lavender Oil and soak yourself – very relaxing and soothing.
Don’t have hot baths though – most people with eczema find heat makes it worse. As others have said oatmeal is great too. put a few spoonfuls in a clean sock/stocking tie it up and pop it in the bath, this will create the soothing milkiness without the chunks floating around and feeling gross!! Add a few spoonfuls of Epsom Salts too as this Magnesium source will relax you.

I also make up a Chamomile tea and add a few drops of Lavender oil and put it in a spray bottle and keep in the fridge and ‘mist’ myself several times a day. Always shake well before use to keep the mix blended.

Good Luck, there’s a lot of great advice here.

Why am I not surprised at the MRI Hepatology Clinic’s behaviour toward you today Dan?

Funnily enough, I had an eot review appointment at my GP clinic this morning. It was a new, very friendly and amenable doctor, who was expecting a routine patient appointment. I explained why I’d been booked in, and he asked me what treatment I’d been prescribed
I told him: “This might be a bit of an eye-opener for you, but bear with me for a couple of minutes.” After me giving him the basics of my treatment program, he asked what involvement MRI Hepatology Clinic had had. Me: “None whatsoever.” Him: “Why not?” Me: I think Dr ****** saw his arse over my getting generics without his say so.” Much laughter from the GP. Next, he wanted to know how much involvement the GP Practice had had in my treatment. Me: “They did as much monitoring as they could, but I had to get my starting viral load result from my rheumatologist at MRI, and I had to pay for subsequent viral load tests privately.” Him: “Why?” Me: ” I repeatedly asked the MRI Clinic for my blood results, but was ignored. And Dr ****** from your GP Practise wrote to Dr ****** at MRI, asking him do do the viral load tests, but he wrote back with a flat refusal.” Him: “That’s just silly!” Me: “Yes, I know.” Him: “Why has he been behaving like this?” Me: ” I think he has his way of doing things, and he doesn’t like any other ways over which he doesn’t have complete control.” On which note, can anybody tell me how I find out what funding my hepatology clinic/it’s individual consultants receive from private enterprise? I intend to stoke some fires over this if I can.

Anyway, the new GP was absolutely fascinated by the whole story, took copious notes, and asked me to keep him updated on my eot progress, which I will.

It’s become obvious to me that GPs in the UK aren’t under the strict NHS Trust guidance that Hepatology clinics are, and are even less under the malign influence of Big Pharma. Which will make a lot of them amenable to giving help, with some charming-but-firm persuasion. Don’t expect them to write scripts (but they’re not absolutely necessary now, anyway), but monitoring should often be possible.

Hi Dan, Sorry to hear of your hospital’s response – I’m pretty sure my hospital will be the same.

Did you get the blood test before you asked them? This monitoring in itself isn’t it? (!)

My GP offered me a viral load test last August and bloods, I thought I was going to get full bloods but when I got the result back, it was just 5 test results so I decided to get some done privately through Blue Horizon. My experience wasn’t great, they held onto the test results for over 7 days, their excuse being that they hadn’t been seen by a GP yet and I had some results out of range. I had already explained that I did not need them to go to a GP as I knew I was living with a chronic illness and the results would be going to my consultant. I also pointed out that as the test results were going to be sent electronically, they could just email them to me (!) and if they felt the need to send a separate GP the results so be it, but please send me my results that I had paid for in the meantime . This took up quite a few phone calls, an online chat and some emails and caused me added stress. On chasing the results up there was also a slightly unfriendly manner from their online chat office too. My instinct is they were angling for me to spend more on seeing a private GP, why else would they hold them back from me? It is very annoying that they had my blood and wouldn’t send me the results! When I went to see my latest assigned consultant at the hospital, he asked where I had had the tests done’ and then said “hmmmm”. Who knows? They don’t seem to want to tell patients anything. My bloods were taken at a private Squire hospital, they took an hour to get them – A right old palavar – you may have read my account on here, I was quite upset. The results it turns out were ready the same afternoon as taken, but BH held onto them for a week and I had to push to get them sent.

Others have used this company and haven’t had any problems, but this was my own experience.

Try your GP first I reckon but be sure to ask him for a full blood test and VL not just LFTs.

Good luck.