Home › Forums › Main Forum › Patient Stories › Joy To the World
- This topic has 26 replies, 14 voices, and was last updated 9 years ago by zhuk.
-
AuthorPosts
-
16 October 2015 at 4:52 pm #2329
Hi everyone, I just want to add my story to encourage others who are undecided about FixHepC. Not that I’ve cleared yet, but I hope to be one of the 95% who do.
I started treatment for the first time 3 days ago – after 30+ years with the virus. I refused interferon last year, waiting and waiting for the PBS to list the new cures here in Australia. But I’m tired of being tired, and jumped for joy when I saw Greg Jefferys’ story on the 7:30 Report. The Lismore Liver Clinic said no doctor they knew would help with a script. My Indian GP was shocked at my plan to go to India. Then Greg’s blog led me to this site. After a consultation with the trailblazing Dr Freeman on GP2U, the Sof/Dac was delivered to my door 3 weeks later.
I had slight nausea the first day but nothing reportable since. Taking meds at nighttime now as advised in the FAQs.
As Greg says on his blog:
Maybe your insurance will cover it next year, maybe it won’t.
Maybe the treatment will get listed on the PBS next year, maybe it won’t.
Maybe there will be better drugs available next year, maybe there won’t.
Maybe all these generic options will be gone next year, shut down by the power of billions of dollars of Big Pharma influence.
How would you feel then?
Highly effective and affordable generic treatment options are out there NOW!
Take control of your health, find the treatment option that suits you best and do it now. You could be Hep C free by Christmas.
http://hepatitisctreatment.homestead.com/generic-harvoni.htmlMAY ALL OF US HEPPERS BECOME HEPLESS. (Not helpless)
Thanks to everyone on this forum for the sharing and the support.
17 October 2015 at 1:41 am #2356Hi Joy
I’m so pleased to hear that you’ve started the journey and I wish you all the best, no sides, clearance at week 4 and svr 12 weeks post. Look forward to watching you become hepless. Now that’s a spin on Crosby, Stills, Nash and Young’s song ….hepless, hepless, hep…..less! Em
17 October 2015 at 2:01 am #2359Joy wrote:MAY ALL OF US HEPPERS BECOME HEPLESS.
Amen!
Good luck, Joy!
Virus not detected from 14.10.2015
17 October 2015 at 2:14 am #2361David Crosby has hep c.
https://en.m.wikipedia.org/wiki/List_of_people_with_hepatitis_C#Music
He had a liver transplant in 1994 paid for by Phil Collins.
https://en.m.wikipedia.org/wiki/David_Crosby#Medical_problems
17 October 2015 at 2:39 am #2364It may be helpful for you to read http://fixhepc.com/blog/item/17-lismore-liver-clinic-now-able-to-see-patients.html
The Lismore Liver Clinic nurses have been given official permission to monitor patients on treatment.
It’s great to see government stepping up on this.
YMMV
17 October 2015 at 3:39 am #2369Thanks Dr James, that is really good news. Guess I was a month too early. Do you know if the Gold Coast University Hospital Liver Clinic is also willing to monitor? I’m due for a Fibroscan there next week, and not sure whether to mention generics. Bloods in August were all normal.
Thanks Em and Nadia, and Chester – what an interesting list of celebrity heppers…from Linda Lovelace to Gomer Pyle.
17 October 2015 at 6:51 am #2373At last we are seeing some commonsense creeping in.Just hope it spreads.
Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise18 October 2015 at 9:00 pm #2458Yes it’s remarkable news really – NSW Health and ASHM (Australian Society of HIV/HBV/HCV Medicine) have joined forces concerning the importation of generics, endorsing the FixHepC Buyers Club as an option.
http://fixhepc.com/blog/item/18-ashm-position-statement-on-hcv-generics.html#sthash.BUzjjAZX.dpuf
Hope other states follow suit.
And I hope Dr James can cope. 3 weeks ago this site had 4000 hits. Now it’s over 1.8 million.
21 October 2015 at 6:34 am #2574Day 7 report:
- more energy – HOORAY
- need 1-2 less hours sleep each night
- eyes have stopped itching (dry-eye symptoms before, using drops a few times daily, now not at all)
- less trips to the loo at night, sometimes not at all (& I thought that was old age)
- feels like I’ve been plugged back in to life’s electrical circuit – or is that a coffee buzz? (only 1 shot a day)
- mild brain fog sometimes – scoring lower on lumosity hmy:
But
overall feeling excited and empowered
And very grateful.21 October 2015 at 7:27 am #2576I play lumosity too! 3 games a day keeps senility away.
21 October 2015 at 12:25 pm #2590Same here on day 7, Joy!
Joy wrote:Day 7 report:
- more energy – HOORAY
- need 1-2 less hours sleep each night
- eyes have stopped itching (dry-eye symptoms before, using drops a few times daily, now not at all)
- less trips to the loo at night, sometimes not at all (& I thought that was old age)
- feels like I’ve been plugged back in to life’s electrical circuit – or is that a coffee buzz? (only 1 shot a day)
- mild brain fog sometimes – scoring lower on lumosity hmy:
But
overall feeling excited and empowered
And very grateful.23 October 2015 at 2:19 am #2648Oops, spoke too soon.
Nausea again yesterday, and an angry red itchy rash on shin, thought it was a sandfly bite at first but it’s grown to about 3″ diameter & turning purple today. A ‘fixed drug eruption’ I guess.
But this too shall pass.
6 day blood tests showed my ALT and AST have dropped significantly (since last bloods in August). So something is happening. Looking forward to the viral load at 4 weeks.
23 October 2015 at 4:16 pm #2671Ohw…ok…!
Joy wrote:Oops, spoke too soon.
Nausea again yesterday, and an angry red itchy rash on shin, thought it was a sandfly bite at first but it’s grown to about 3″ diameter & turning purple today. A ‘fixed drug eruption’ I guess.
But this too shall pass.
6 day blood tests showed my ALT and AST have dropped significantly (since last bloods in August). So something is happening. Looking forward to the viral load at 4 weeks.
10 November 2015 at 2:03 pm #3609Bloods taken on day 20.
And the result is:
UNDETECTED!!!
WHOOOPPPEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE
Can’t stop smiling
10 November 2015 at 2:08 pm #3610 -
AuthorPosts
- You must be logged in to reply to this topic.