Splitdog in the US

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30 June 2016 at 10:48 am #20170
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
Thanks guys.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
30 June 2016 at 11:29 am #20173
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hey Split…

So very sorry to read, it must be a shock. I hope you’re doing ok?

Thank God for Dr F hey – You have some more opitions.

I am now at week 25, making sure I give it my all and know what a long tx is like. Nothing too bad, just …… long! I’ll be around to support if you need a listening ear.

Keep the faith, you’ll get there.

In the meantime, chin up my friend.

LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
30 June 2016 at 2:34 pm #20180
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Sorry to hear this news Splitdog, but I’m sure you will beat this with so many available treatment options
30 June 2016 at 3:07 pm #20181
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
Hey Splitdog, sorry to hear your news, but yes Mesochem has Velpatasvir and several other options as well.

I suspect what Dr. James is saying is that he can’t technically prescribe it until Australia follows the US lead and approves its use. But it is physically available now. A member here has talked with me in PMs about it and decided to order 12 weeks of it. It cost US$1060.00 for 9 grams delivered … 12 weeks treatment. And it arrived 15 days ago.

You’re gonna win this battle, just keep going.
30 June 2016 at 3:16 pm #20182
Dr James
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- Guardian Angel
@fixhepc
Velpatasvir is not suitable for compounding at home.

http://fixhepc.com/forum/experts-corner/1132-velpatasvir-is-not-suitable-for-home-compounding-from-api.html

YMMV
30 June 2016 at 3:23 pm #20184
klhilde
- Topics: 30
- Replies: 223
- Total: 253
- Guardian Angel
@klhilde
I just discovered your other thread. So now I guess I’m wondering … is this a process that can be done by any compounding chemist, i.e., Kingswood?
30 June 2016 at 5:37 pm #20188
re_roll
- Topics: 8
- Replies: 120
- Total: 128
- Guardian Angel
@re_roll
Jim….so sorry to hear about your relapse. You have one of the best
experts available here, Dr F. We all know he will show you the way.
Good luck….e.

contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
SVR24
30 June 2016 at 6:28 pm #20191
Bob in ireland
- Topics: 6
- Replies: 48
- Total: 54
- Recovery Champion
@bob-in-ireland
Aww Jim so sorry to hear that– am sure with all the expert support and advice here youll get started asap on a new combo to clear.
Youre in my thoughts and prayers

Bob in ireland
3 July 2016 at 9:07 am #20366
CC2B
- Topics: 2
- Replies: 171
- Total: 173
- Guardian Angel
@cc2b
Dame Splitdog, sorry to hear this
I know you will beat this
Just gonna take longer than what we would like.
Hang in there

GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
3 July 2016 at 9:53 am #20368
fretboard
- Topics: 10
- Replies: 164
- Total: 174
- Guardian Angel
@fretboard
splitdog wrote:

I went to the Dr yesterday to get my SVR12. The virus is back. Count was 3,300,000. We’re doing a retest, but I’m just not optimistic. I guess I need to do a full 24 weeks now…….;(

Dang! That sucks overtime!! So sorry to hear about your relapse… Your day to reach SVR will come to you. Unfortunately for some of us it takes longer. good luck!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
3 July 2016 at 11:49 am #20370
Ariel
- Topics: 3
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- Guardian Angel
@ariel
Hey Split
Don’t know what to really say, relapse is so personal Ty for sharing and I hope I can offer support your inner strength is admirable, and to wish you full clearance, this stage of your life just now soon will all surely sort out, and you are still fighting on like you do.
Keeping you in my thoughts
Ariel
3 July 2016 at 4:04 pm #20395
sabrecat
- Topics: 2
- Replies: 258
- Total: 260
- Guardian Angel
@sabrecat
splitdog wrote:

I went to the Dr yesterday to get my SVR12. The virus is back. Count was 3,300,000. We’re doing a retest, but I’m just not optimistic. I guess I need to do a full 24 weeks now…….;(

What do you think, doc?

Hi Splitdog,

I am off to have my blood taken for my hoped for SVR12 tomorrow. I did 24 weeks and at this time I do not think the virus is around. But I will know for sure after the test comes back. I purposely did not have tests after EOT, just one in Nov 2015 and one in Jan 2016 while on treatment.

Best wishes and let us know the next strategy – it may be helpful for me to know what to do if my test comes back no good. And your calm demeanour is reassuring for me as well.

Yours

Jeff
3 July 2016 at 5:39 pm #20397
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
The new stuff will nail it.
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
4 July 2016 at 9:40 pm #20460
Sirchinenge
- Topics: 7
- Replies: 260
- Total: 267
- Guardian Angel
@sirchinenge
Am gutted to read of your relapse like everyone else am sure with all the options
available you’ll get there!

Best of luck.

Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
8 July 2016 at 1:04 am #20672
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
Re-test came back today. VL= 20,741,477. Wow. I guess I’ll retreat with sof/vel this time.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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