The second wait!

This topic has 56 replies, 17 voices, and was last updated 7 years, 4 months ago by coral.

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8 July 2016 at 6:18 pm #20717
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Sabrecat…. what a gut punch, brother. You’re in the right place though. Thank god for that. New treatments are becoming available, and you ‘re a fighter. My money’s on you to whip this.
8 July 2016 at 8:23 pm #20720
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
So sorry to read this SC – “Shit-O-Gram” indeed
Take good care of yourself, your liver must have had a good rest over the past months, which must be a good thing.
I hope a new treatment plan comes along for you soon. Keep us posted.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
8 July 2016 at 9:59 pm #20722
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Damn

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
9 July 2016 at 1:05 am #20727
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
You and I are in the same ‘retreatment’ boat, my brother. I have Gen 3. What is yours? We WILL beat this. I think I’m going to try the Sof/Vel/Vox this time. Right on, Jim

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
9 July 2016 at 2:36 am #20728
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
Sorry to read your news SC looks like plan B is going to be unleashed, its reassuring to know there are options out there for those who need to retreat.
Best Wishes
T

SVR 24
9 July 2016 at 4:05 am #20729
sabrecat
- Topics: 2
- Replies: 258
- Total: 260
- Guardian Angel
@sabrecat
Thanks all and Hi Splitdog,

my unwanted friend is 3a and it seems its desire to keep me company did not diminish after 24 weeks of treatment.

I think my next moves will need a lot of consideration given that my liver has needed to have another unwanted guest (a HCC) evicted some years back.

The good news is that there are ‘next moves’ to consider I suppose, but I have to admit that this virus gives me the shits at times.

Yours

Jeff
9 July 2016 at 5:23 am #20732
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Jeff. I’m so sorry and frustrated for you. Your unwanted friends are taking a while to get the message. You have earned the time to have the shits and consider carefully your next options. Coral
29 July 2016 at 1:13 pm #21600
sabrecat
- Topics: 2
- Replies: 258
- Total: 260
- Guardian Angel
@sabrecat
Hi all and anyone,

saw my specialist last Monday this week and will see him in a few weeks to discuss re-treatment.

Seems DAA’s are very much on the agenda now. Had to chase up the ultrasound which was not copied to him.

The ultrasound is fortunately ‘not remarkable’ so another wait until seeing the specialist again.

Seem to have that old feeling again – lethargy in the main, as well as feeling down in the dumps.

BUT, then again there is re-treatment.

Yours

Jeff

P.S. thanks to Dr F. for the private email following me up.
29 July 2016 at 1:33 pm #21609
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Bugger, Bugger, Bugger
The gift that keeps on giving, hey
Sending you good vibes

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
29 July 2016 at 10:48 pm #21632
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Hi Sabre
I have been away from forum but popped a note on Corals thread
I’m sending you empathy and thinking of your job ahead retreating and kicking the bugger for ever
It’s exciting to read about these new meds and I jolly well hope that you and some of the other friends who have to have another go get your best fit tx asap
Thinking of all of you who are retreating soon
Ariel
29 July 2016 at 11:05 pm #21634
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
I second Beaches’ and Ariel’s sentiments, Jean Marc. We’re all here in your corner!
21 September 2016 at 1:46 am #23161
sabrecat
- Topics: 2
- Replies: 258
- Total: 260
- Guardian Angel
@sabrecat
Saw the specialist this week and back in the race again popping pills from Monday next week.

I have been following many posts about SVR 12 and 24, and UND at EOT, but quietly in doing so. Must be a symptom for me to go all quiet after finding HepC is detected again.

Often thought I should be making congratulation type comments but have left doing this to the usual suspects on this forum. It is interesting for me the difference it made seeing others pull through though, like even though my little part of the world had turned to shit, there was still something good happening.

Fitz said: “We’re all here in your corner!” and I have always felt that even having Hep C has it’s redeeming points – meeting lots of people willing to support each other.

yours

Jeff
21 September 2016 at 2:01 am #23162
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
What drug did you choose this time?

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
21 September 2016 at 3:52 am #23164
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
May force be with you m8
I always feel a bit insensitive when celebrating on the forum, knowing that I could easily be in your shoes.
Genotype 3 is a bugger to treat but thankfully the research is moving along quickly.
Hopefully you have got it this time

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
21 September 2016 at 4:10 am #23167
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hey, beaches,

Don’t feel shy on my behalf, the rest of you have all earned the right to celebrate as hard as you want! I’ll be along to join you as soon as I get me laces tied.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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