Young J the dragon slayer

This topic has 213 replies, 35 voices, and was last updated 8 years, 7 months ago by CJ.

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12 November 2015 at 1:17 pm #3732
CJ
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- Guardian Angel
@cj
Hi Everyone,

I wanted to share my son’s story here as it may help anyone else in my position.

I had hep for probably 30 years, & finally after 4 horrible treatments with the dreaded Interferon + Ribas I got cured
but unfortunately , after trying to have a child for 10 years on IVF I finally had my boy, only to find later he also had the dreadful virus

It broke my heart & I felt guilty for the past 15 years.

He has gradually started getting hep side affects, tiredness, & getting sick a lot.

Nobody would help, I talked with different specialists/doctors, all he was offered by his uncaring specialist was the Interferon + Ribas but actually laughed at me when I asked him about the generics for him?! hmy:

How could they condone the Interferon but not the generics??
Then I found Dr James, can’t tell you how unbelievably happy it made me to find him.
What a wonderful, special human being he is. A doctor who actually genuinely cares.

So….” J ” (my 15 year old son) started on Twinvir 2 days ago.
NO SIDE AFFECTS AT ALL!!
His VL was around 2 million. LFT’s up slightly pre treatment.

He will have his first bloods done a week into tx (treatment).
Can’t wait to see what they reveal.

He seems to already have more energy, & sleeping well at night.

So let the dragon slaying begin

Good luck to you all,
Love Cindi

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
12 November 2015 at 1:27 pm #3734
zhuk
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@zhuk
Great to hear it Cindi, only two days and you’ve seen such positive results – I’m sure that J will do well. I can only imagine the hell you’ve been through watching your child get sicker, and even worse knowing that there is something out there which can help him, and which the establishment refused to help you obtain. What a chance we have all been given through the club and Dr James’ compassion…a sad indictment on the system when you are actually taken by surprise by that fact.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
12 November 2015 at 1:30 pm #3735
LondonGirl
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@londongirl
VYou must feel so much more hopeful Cindi and your heart a bit lighter as each day goes by.
The very best wishes to you and your son.
LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
12 November 2015 at 1:59 pm #3737
CJ
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@cj
yes, it’s a wonderful feeling.
SO frustrating knowing those orals were out there but untouchable.
SO frustrating for so many people.
Thank goodness for Dr Jame’s kindness.
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
12 November 2015 at 2:03 pm #3738
Joy
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@joy
Yes fantastic news Cindi and I wish you and your son all the best during his healing process.You are in very good hands.

It will be a healing process for you too in the end – goodbye guilt, hello life!
12 November 2015 at 2:55 pm #3744
Life
- Topics: 2
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@life
Hey Cindi! What a story!!! I’m really happy for you and your boy!!!
13 November 2015 at 2:45 am #3782
berrinice
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@berrinice
That’s great news Cindi, prays are with your boy. I had debilitating Hep A for months when I was young and bounced back physically. No special diets etc etc. Your health knowledge will keep him in good health. Many thanks to the Doc.
13 November 2015 at 10:11 am #3842
Paul-Jarman-facebook
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- Guardian Angel
@paul-jarman-facebook
Young J won’t know himself in the next few weeks, good luck Cindi.

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
13 November 2015 at 10:23 am #3843
emilio
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@emilio
What an amazing story Cindi, he will now be able live a normal life and do whatever he wishes to do. Please keep us updated on his journey and cure. Em
13 November 2015 at 11:37 am #3851
CJ
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- Guardian Angel
@cj
Thank you for all the encouragement!
J seems to have more energy & is smiling a lot more as well.
He actually says he had a “good” day today at school….usually he only shrugs or grunts!!
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
13 November 2015 at 1:21 pm #3867
Chester
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@chester
Oh my god they must cure teenageism as well! hmy:
14 November 2015 at 4:21 am #3917
CJ
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- Guardian Angel
@cj
yes I think you might be right!!
x

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
14 November 2015 at 12:53 pm #3936
CJ
- Topics: 10
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- Total: 372
- Guardian Angel
@cj
J has had another good day, still feels good.
I’m very unpopular with the woman who runs the other forum, I just found out.
Don’t think she likes this forum, or that I’ve moved over to here.!
It’s very stressful for me, wish she’d leave me alone.
Anyway, I wont be going back there. hmy:

J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
14 November 2015 at 2:36 pm #3940
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
As long as J gets well it will all be worth it Cindi.

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
14 November 2015 at 3:06 pm #3941
Alsdad
- Topics: 18
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- Total: 335
- Guardian Angel
@alsdad
Does Australia have communications harrassment laws? If so, why don’t you make a formal complaint to the police? She won’t remain anonymous for long if they decide to take up your case.
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