Home › Forums › Main Forum › Patient Stories › Young J the dragon slayer
- This topic has 213 replies, 35 voices, and was last updated 8 years, 7 months ago by CJ.
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11 December 2015 at 11:18 am #5899
yes Coral, I feel like a huge weight has been lifted off my shoulders, so happy!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!11 December 2015 at 11:24 am #5901Cindi that is the BEST news! Brought tears to me eyes that Young J has been saved so much misery and can look forward to a much brighter future.
11 December 2015 at 11:50 am #5909Wonderful news for you both.
gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc11 December 2015 at 12:22 pm #5914Cindi,
That’s such good news to hear. So happy for you both.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
11 December 2015 at 12:28 pm #591511 December 2015 at 12:36 pm #5916A big thumbs up for young J from me Cindi, played it well Now you and your family can get on with your lives without the spectre of this bloody disease hanging over them.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
11 December 2015 at 12:58 pm #5918GREAT news
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC11 December 2015 at 1:07 pm #5923Thank you.
I know it’s not “SVR” but still feels soooo good!!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!11 December 2015 at 1:54 pm #5929Wonderful news for both of you
YMMV
11 December 2015 at 2:08 pm #5933Sooooooooo good. So, so good.
Been sweating on this one. Thrilled for you and J both Cindi. Wanna bake a big old humble pie for cp but nowhere to send it.
The Superdoc thing is a total crack up.
11 December 2015 at 2:10 pm #5934Just awesome news for J and you, Cindi!
He can have a life freed of that sword of damoceles, great stuff.
Also gotta love his response, and tribute to Dr James…relieved for you both
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 2611 December 2015 at 2:53 pm #5941Ha Chester! yeah “Superdoc” , good one, yes, he really is though.
I know he’s my hero.He’s the only one who would help J.
It’s amazing.& doc James, Superdoc, is amazing
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!11 December 2015 at 4:34 pm #5957Good for you both had my fingers crossed for the young lad. Congrats
Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 … waiting for svr 24
I now have SVR 36 weeks.11 December 2015 at 4:35 pm #5958WONDERFUL NEWS!!!
G2B – DIAGNOSED 2014, STARTED SOF/DAC 11/11/15 VL 6M
UND @ WEEK4
FINISHED TREATMENT 26/4/16
UND @ WEEK 24
ALT 12 AST 15
MY ETERNAL GRATITUDE TO GREG JEFFERYS & DR FREEMAN11 December 2015 at 8:09 pm #5981Congratulations Cindi!
It was the right decision, and putting the story on the forum was the right decision too. Thank you for that.We have to go with the best information we have sometimes. Sometimes waiting for more data, more reassurance, just more wait, wait, wait is the wrong decision. Dr. Freeman made the right decision and you made the right decision …. and that would still be true even if we didn’t have these results yet … the attempt had to be made at some point and you decided that NOW was the time and you went for it. Good for you …. Good Mother.
And now that you’ve done it, and shared the experience here on the forum, maybe it will be the thing that is needed to get others to make the decision too. Again, thank you for that.
And … I should probably apologize for my insensitive little joke about the possum. While I still think it was kinda funny, it was definitely not the time to be kidding around … sorry. ops:
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