Janie - FixHepC

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16 April 2016 at 9:32 am in reply to: FixHepC – Party Playlist #15559
Ariel
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- Guardian Angel
@ariel
What a song it’s tearing my heartstrings Hazel
16 April 2016 at 3:14 am in reply to: Liver Conference Barcelona 2016 – #15537
Ariel
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- Guardian Angel
@ariel
Jeff thankyou for agreeing that Interferon did more harm than good it caused so many cell changes in me and many other serious sustained injuries such as audiometrically assessed higher pitch severe hearing loss, kidney damage including stones requiring surgery etc
I’m hearing you on this.
I was perfectly well before some fool put me on interferon. VL 420,000 no other tests done, I had no knowledge anyway of anything and got screwed. I’m F0 btw. They didn’t even check until after.
Thanks Mike for the conference updates
I only hope they NEVER use peginf on ANYONE ever again
These new meds are easy
Plus they actually work.
Ariel, who is awaiting her 4 weeks post EOT bloods
16 April 2016 at 1:00 am in reply to: Liver Conference Barcelona 2016 – #15533
Ariel
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- Guardian Angel
@ariel
Dr James has done a request for UK patients here

http://fixhepc.com/forum/media-news/902-uk-patients-willing-to-speak-to-the-media.html

I read it yesterday morning our time
I went in media here in Oz it’s a good thing to do. Tina did in NZ.
They edited some of what I wrote but no significant changes to ruin the truth of my story.
I’m not popping up the link for privacy reasons this is just me haha. It has my real name etc.
Go for it somebody
And thanks James for all you’ve done for us worldwide with this weeks work
Ariel
16 April 2016 at 12:54 am in reply to: Why ALT Range differs for different Labs #15532
Ariel
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@ariel
Hi Enkel
Yes what Gaj said, my GP told me a while ago the ALT AST will wobble around a bit just watch it stays in range. Hope you are doing well good to hear from you
Cheers from Ariel
15 April 2016 at 2:34 am in reply to: The second wait! #15495
Ariel
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- Guardian Angel
@ariel
Thanks heaps Mike
Hard to empathise with this I know so ty
I’m glad that I am not the only blogger of this issue.
I set myself up to be type cast talking anxiety and PTSD, just anything like “drama queen” etc in others opinions of me but don’t care this is real. It needs to be out there because there are a truck load of peginf relapse like me who may well be silently saying yup I get her totally.
I’m on double Valium am and pm plus something new, half a tab, for a few weeks.
PTSD is serious. And I don’t want to set myself up anymore. Two more weeks it’s not long then the wait for the results
I feel achieving SVR 4 for a peginf relapser is very significant
My sane voice is saying you will get your SVR
TY Again
Ariel
14 April 2016 at 10:57 pm in reply to: The second wait! #15490
Ariel
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@ariel
Hear hear Annasnow I wait for SVR4 here with a severe case of PTSD I didn’t expect as I have been UND since around Day 32 I am surprised at the magnitudinous effect on my subconscious by earlier peginf relapse and yep I agree I just want to stay UND
Lucky I have a fabulous GP and only two weeks to go til we pull my SVR 4 bloods. Once over that marker I rekn I will be in a very good headspace xxx thanks for this blog people
14 April 2016 at 12:56 pm in reply to: FixHepC – Party Playlist #15470
Ariel
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@ariel
How good were they I still have my old cassette too Beaches
The playlist is on YouTube!!

Loving this one too I used to sing along to this as well she’s divine
14 April 2016 at 10:47 am in reply to: FixHepC – Party Playlist #15463
Ariel
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@ariel
OOOh I found a cool band that used to be around in the late 80’s I love this band’ and this song!
14 April 2016 at 8:10 am in reply to: Gilead- Evil in the Form of Greed!! #15453
Ariel
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@ariel
Vomit all over them. Disgusting.
14 April 2016 at 7:55 am in reply to: Ariel takes the Plunge #15452
Ariel
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@ariel
I’m loving that chick on the SUP Beaches
My consult was cathartic I had a good let down turned into a big blubbering seal doing the flipper roll in my GPs room. Get through to SVR4 bloods he said and he is right, he pointed out that pulling bloods now isn’t going to help this is straight out of my last tx experience and no he doesn’t think it’s anything but that. Just get through these next 2 and a half weeks pull bloods and then review. The odds are on my side anyway as I have reported consistently in my blogs. It’s simply severe PTSD from peginf relapse and tx syndrome from it too.

I know I have shot myself in the foot. I’m looking forward to writing UND and you can all have a dig at me cos I will need the laughs I can assure y’all!
Over 90% is amazing after all.
Ty for outting the doc who wanted you on peginf Beaches, I wish I had been told about it rather than just being basically shoved onto it not being told anything except it would “cure me”. It is that legacy that has created the need for this consult today and sharing on the forum re anxiety. I’m so glad I have an excellent GP who is prepared to work with the recommendations of the FixHepC data and protocols. Luck
14 April 2016 at 2:01 am in reply to: Ariel takes the Plunge #15430
Ariel
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@ariel
Ty Gaj and Beaches
I’m into yoga I started individual training in peginf days and even had yogic healings to assist with the projectile vomiting that I had up to ten or more times at a time. When I was well enough to get up I did the Tibetans and other low level yoga exercises. My yogi still attends to me and I do TM. I will see if there’s more I can do yoga wise ty Beaches for the prompt.
Gaj if I listed ex students who have recorded stuff it would be embarrassing. Wally, well I didn’t teach him though, oh maybe yes in Primary can’t remember. In 25 years I taught a lot of musos.

What I have seen in my HepCV so far has screwed me. I’m sorry if I appear narcissistic in any way
At present my shoulders I cannot feel, or my legs. My mind is flashing subconscious to conscious stuff like the day in 2013 they blithely told me I relapsed after the peginf I never needed and which has f-ed much of my health. Not HepC but that tx

Anyway just bangin on here
Have a good one
Don’t let me put anyone off tx it’s not about this meds.
Ariel
14 April 2016 at 1:46 am in reply to: FixHepC – Party Playlist #15429
Ariel
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@ariel
Pat1 those Patsy Cline songs reminded me of road trips during Uni break driving up through the Simpson desert. We also had Roy Orbison in the mix ah those were the days
Glad and ty you always enjoy my little additions to the playlist too I try to listen to all of people’s tracks apologies if I missed any xxx
I guess I should pop up a Roy song he’s smooth like ice-cream.
13 April 2016 at 5:16 am in reply to: HCV RNA UNDETECTED #15378
Ariel
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@ariel
Totally understand
I’m in the Public Hospital Liver Clinic but all my path is done via GP since that similar result came in via Monash and I realised that their take on path was super relaxed. Even the 8 week one I walked out with lacked a PCR RNA request and so what was the point I figured I had asked for it just didn’t get what I wanted. I’m told “oh you’re self funded” anyway, so they don’t mind if my path is just cc to them from Dorevitch. My bestie surf buddy up there works for Sullivan N’s and they do a great assay range and fast turn around PCR RNA if it helps for info
I’m hanging around waiting for SVR 4 bloods it’s vile, I keep misplacing everything!
13 April 2016 at 5:07 am in reply to: Ariel takes the Plunge #15376
Ariel
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@ariel
Over a week into EOT and I have booked a GP appointment
In the meantime I am listening to this chappie from Oz. I think of HCV as “somebody that I used to know” and it’s getting me wired better.
May HCV be somebody that we ALL used to know!!!
13 April 2016 at 3:26 am in reply to: HCV RNA UNDETECTED #15369
Ariel
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- Guardian Angel
@ariel
Hi there, with an unquantifiable result showing outside the readable assay range it is a great time to request a PCR RNA they cost nothing. make an appointment with any GP and ask for one. Even a 24 medical centre will write one up. Dorevitch do a great assay, here. Sullivan Nicholedies on Qld are the best. This will then show a clear UND or not. It is that simple.
If you read my first month blog on Ariel takes the plunge you will see a similar issue I had an unquantifiable at Day 25, came back UND at day 32 on this path request I am describing.

I simply followed this bloods procedure FF. I requested this test as per James explanation. PCR RNA. . If it comes back as UND you are clear. At present there is a “smudge” yes it can be dead or alive LG, I heard this too and have read it and have had it confirmed by doc. FF make sure the GP ticks the Bulk Billing box on the path request or you will pay.
I bet you come back UND
Cheers, Ariel
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