Home Forums Main Forum Patient Stories End of Treatment – EOT discomfort in liver after tx

Viewing 15 posts - 1 through 15 (of 59 total)
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  • #16493
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    Anyone feeling this? Been 2-3 weeks post tx

    #16500
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    I’m not actually sure what liver discomfort feels like but I have a “burning” sensation on and off above and around my tummy and under (but I have had this for a long time so maybe that’s what it is)…..other than that feeling pretty good :)


    YMMV

    #16501
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    Take probiotics.

    Mine is pain in liver right abdomen

    #16502
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Tweakmax, I had the pain after EOT at exactly the same time as you are now. I cannot recall predominantly where the twinges were some right side some left side, they have gone. My SVR path is excellent so far, my LTFs have continued to drop. Re the twinges, I think it is fine…but I don’t know your liver health and I am just another patient, :) :) I am around F0 I also do not know if it is anything to do with fibro score either! Hope you are feeling okay otherwise, Cheers from Ariel. #flower #flower #flower

    #16507
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    I have had the same bloated swollen discomfort in my liver area since pre tx, thru tx and now 9 weeks post tx. it’s still there, although lately somewhat less. In my case I put it down to liver damage. i went into tx as F3 so obviously my liver has some healing to do.
    Some other issues that are still bothering me, mostly gastro stuff, I think come from the same place.
    I also believe, but I could be wrong, that healing isn’t neccesarily a pleasant process. A broken arm, after being set still hurts even though it is healing. Burns, the same thing. etc etc.
    I guess time will tell, but I am only now starting to feel “stable”, 9 weeks after tx. I put that down to my liver battling to do it’s job properly again…


    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    #16509
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Hi tweakmax, I had same as you after EOT. Definite pain in liver area rather than discomfort sometimes but fairly fleeting. I haven’t noticed it for the past week or so and will be 4 weeks EOT on Monday. Think it’s gone! I have heard it said it can be the healing process, and a few people have experienced it, I also remember seeing it mentioned on a uk site. Nothing to worry about I think, though we do worry at EOT!
    All the best, debs #flower

    #16511
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price
    #16512
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    Have the same pain on the right side + headaches, a bit of nausea. Its 8 weeks EOT for me. Time will tell I guess


    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    #16514
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Same here, plus still upset stomach and lots of gasses after meals. Dunno is it related to liver or it is just stomach upset from tx that need time to settle.


    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    #16531
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    darbara wrote:

    Have the same pain on the right side + headaches, a bit of nausea. Its 8 weeks EOT for me. Time will tell I guess

    Yes headache and a bit nausea too

    #17580
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    Its 11 weeks now and next week I go for the 12 weeks EOT bloods. The feeling is the same since last I posted in the thread. Need to take a pain killer to get that discomfort away. Sometimes the brain tells me its back but will see. Someone suggested milk and vitamin D


    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    #17588
    Avatar photosabrecat
    • Guardian Angel
    • ★★★★★
    @sabrecat

    Hi tweakmax,

    I am 5 + weeks EOT and have some indistinct feelings as well.

    The first is some tiredness and the second is a sometimes pain in my right side where I would expect the bottom part of my liver resides.

    Due to see my G.P. about follow up anyway and will ask about the pain.

    Since treatment there is more energy and hence more heroic gym stuff – the tiredness at times seems to be a ‘good tiredness’ rather than just not wanting to get out of bed.

    The pain is around and in a dirty great big scar from surgery which appears to have reddened and got angry looking after all the gym heroics. I think I have strained something?

    I suppose the point I am trying to make, is that for me this virus will sometimes do your head in. And now hopefully it is dead and buried, it’s ghosts will attempt to do the same.

    Yours

    Jeff

    #17590
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    I can feel it too

    Esp the part the fibroscan reading is the highest out of ten tries

    #17593
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    For me now its nearly all the time since the last 4 days. Its from the right side just below the liver right till the back. Its not sharp just strong dull pain, more like a swelling. Feels like a sprain or muscle twist. Hoping it goes away. But it was gone on treatment but now back. Crap!


    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    #17595
    Avatar photoMeg
    • Topics: 3
    • Replies: 92
    • Total: 95
    • Guardian Angel
    • ★★★★★
    @meg

    Hi I am sorry to hear you still feel discomfort in the liver after tx. I hope it goes away soon.
    I heard that we are supposed to drink at least 64 ounces (two litters) of water/fluids a day to both keep hydrated and help the body flush toxins out. Are you all drinking lots of water? Wondering too what pain relief could be taken to alleviate the pain and discomfort. Besides the actual ” healing process” some of you mentioned, what could possibly be the causes of pain after tx?


    Blood transfusion in 1992 – Diagnosed in 2007
    Tx naive -G1b – F1
    VL 2.270.000
    ALT 40
    Start tx June 4th/2016 with DAAs – Sof/Led from India
    Bloods on two weeks of tx (June 18th)
    AST 17 – ALT 10 – GGT 19
    Virus UND
    Bloods on six weeks of tx (July 16th)
    AST 17 – ALT 8 – GGT 12
    Virus UND
    EOT on August 8th (did 9 weeks and 3 days)

    SVR 4 Virus UND (September 7th)
    AST 13 – ALT 5

    SVR 14 Virus UND (November 12th)

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