Home › Forums › Main Forum › Patient Stories › End of Treatment – EOT › discomfort in liver after tx

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  • 21 May 2016 at 11:52 pm #17598
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    These medicines are for ridding the body of the virus, but I guess they don’t cure the damage and digestive issues caused by it overnight, so if there was liver damage previously, it will still be there, albeit with less inflammation ? Time has shown an improvement in many patients from what I have read. My liver has improved quite a bit on the medicines. (I am still on treatment, so we shall see after it ends).

    I also still get this discomfort on the lower right hand side as many have described above. I went for the amazing new LiverMultiScan and strangely, that area was the clearest part of my liver regarding fibrosis ! I have read the lower ribs cage can become inflamed, gallbladders can also cause problems. When you see your liver on the LiverMultiScan it makes your realise just how large and important the liver is – I was shocked at the size of mine, it is huge and goes right around to the left side too ! it makes sense to me now, that if the liver is unhappy, then nearly everything else will be.

    Who knows what it is, maybe something in the ‘piping’ ? ;-) It would be very interesting to know !

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    22 May 2016 at 3:51 am #17611
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj
    darbara wrote:

    For me now its nearly all the time since the last 4 days. Its from the right side just below the liver right till the back. Its not sharp just strong dull pain, more like a swelling. Feels like a sprain or muscle twist. Hoping it goes away. But it was gone on treatment but now back. Crap!

    Hi darbara,

    I also have some pain in that area which comes and goes, I liken it to a mild “stitch” that you would normally get from exercise. I have discussed it with my Hepatologist but he hasn’t been able to find anything obvious to explain it via physical and blood tests or scans.

    Only you can tell how much the pain has increased in intensity and/or frequency in the last few days. Consider that it may be HCV related or possibly a sign of something else but if the increase is marked then seeking medical advice to determine whether it is important would seem to be prudent if only to give peace of mind.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    22 May 2016 at 11:44 pm #17630
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    I also had pains just below the liver before tx, and it was stomach related. Diagnosis was helicobacter pylori, which I eradicated with antibiotics therapy. After DAA tx I’m again getting my stomach upset with lost of gasses and sometimes pain, so if it not stop soon, I will again run some stomach tests.
    As I understood liver don’t hurt, the only pain in liver can come from gallbladder issues.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    22 May 2016 at 11:53 pm #17631
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    I’ve had tons of weirdness around my liver area and gastro problems and FINALLY about 10 weeks after EOT it is starting to let up. Hopefully it stays like this!

    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    23 May 2016 at 12:02 am #17632
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi
    I’m F0 and went in with a very low VL (240,000ish)
    I have had exactly what Gaj described
    It went away.
    I’m around 7 or 8 weeks past EOT not sure exactly
    My pain was like a sharp stitch
    I didn’t worry about it just asked my GP and talked to a friend for peace of mind
    I got SVR 4 regardless of the pain stabs
    And yes they’ve gone.
    Ariel
    (Who’s just tried to allay any people’s worries in a long winded manner)
    :+1: I agree a GP check.

    23 May 2016 at 6:37 am #17643
    Avatar photoPhoenix
    • Topics: 12
    • Replies: 60
    • Total: 72
    • Recovery Champion
    • ★★★★
    @phoenix

    I’ve had the mild to moderate sharpish pain around lower right ribcage as well, both during and particularly post-treatment. But not for a few weeks now – I’m about 8 weeks post treatment with SVR5. Doesn’t seem like anything to worry about B)

    7 June 2016 at 9:40 pm #18630
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    Its 13 weeks EOT should get results soon but the discomfort in the Abdomen, liver swelling type feeling and bloating continue.

    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    7 June 2016 at 9:43 pm #18631
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Dabara, Have you tried cutting out gluten? Just a thought.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    7 June 2016 at 10:17 pm #18632
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    no not tried will try it

    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    8 June 2016 at 11:41 pm #18706
    rememberdecember
    • Topics: 1
    • Replies: 17
    • Total: 18
    • Acolyte
    • ★★
    @rememberdecember

    Hi Darbara

    I can certainly relate to those pains: I’ve had them for years in my liver. When I speak to doctors they say that the liver has no nerve endings in it so it can’t feel pain, but the surrounding capsule does have nerves and it gets irritated when the liver is swollen.

    But regardless of what the science says the pains I get are so specific and described by other HCV sufferers so they must be coming from the liver. I get 3 types of pain, all below the right rib cage…

    – occasional dull ache/stitch lasting a few seconds-minutes
    – very occasional short darts of pain/twinges
    – occasional burning sensation lasting few minutes

    As others have mentioned your pre-treatment liver damage will take time to heal. I hope the sub-text isn’t that you worry that you have relapsed…hold tight and wait for the EOT +12 VL; and you know the odds are hugely stacked in your favour.

    I’m still on treatment and got these pains much more at the beginning of treatment than usual…I re-framed them as my liver healing rather than something to worry about.

    Patrick

    45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
    Null responder interferon/ribavirin 2008;
    4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but…
    6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.

    9 June 2016 at 12:17 am #18708
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    I have had them for over 2 years BUT there are times when its gone for a few months. A month into treatment and I had nothing. 2 months after treatment its back again. I dont fear relapse as there is enough treatments out there. Ive done myself a favour by stoping booze for the last 12 years or so, thats helped me I am sure of it.

    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    15 June 2016 at 2:41 pm #19120
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Perhaps not too much related with the purpose of this thread, but here is a tip that works every time in my case when I have this liver discomfort: I chew a small piece of fresh ginger (15-20 grams) and afterwards I drink a glass of water. It is spicy, but you don’t have to swallow the fiber part of the ginger, the juice you can get from it makes wonders. In my case, the discomfort goes away in couple of minutes.

    Some caution needs to be taken into account if one takes pills to decrease blood pressure

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    15 June 2016 at 3:17 pm #19121
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Good Tip Rohcvfighter

    I HATE ginger … with a passion.

    But, found it to work exactly as you described.

    For the Aussies here, I used “Buderim Crystallised Ginger” … it’s not too hot … but works.

    I viewed it as medicine … I haven’t tasted any sort of medicine that has tasted good.

    :+1:

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    15 June 2016 at 3:47 pm #19125
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches
    GT2 wrote:

    Good Tip Rohcvfighter

    For the Aussies here, I used “Buderim Crystallised Ginger” … it’s not too hot … but works.

    :+1:

    GT2 I hate to tell you but when you eat crystallised ginger you may as well be eating lollies (candy to you, American friends)
    Have you tried a hot drink of ginger and fresh mint with hot water poured over it?

    https://www.youtube.com/watch?v=KiEUkYCuvuM

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    15 June 2016 at 3:51 pm #19126
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    If you like juice apple, carrot, celery and ginger (about 1 inch of root) is not a bad drop.

    YMMV

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