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  • 13 November 2015 at 3:01 am #3787
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    Sure Jolie it has given us treatment power, but these drugs do need expert advice. Please don’t do any drug combinations without expert advice. Drugs interact with each other. You could end up with organ failure if not following the experts. We do this is cause the drugs are far too expensive not the drug combinations are wrong. I am a 3 non responder with cirrhosis, a hard to treat category, even though desperate to clear this virus, I wouldn’t mix medicines. kindly

    13 November 2015 at 3:12 am #3790
    Avatar photoJolie
    • Guardian Angel
    • ★★★★★
    @jolie

    Please don’t worry, I won’t be mixing anything myself. Said that the med I have in mind is already approved with combination of Sofo it,s called Velpatasvir. The trials have been all already completed, best so far tx for Geno 3,
    I already suggested it to Doc James as possible Redemption 4′

    Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
    Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
    5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
    5 weeks HCV PCR RNA – UND. – down from 2 ML
    9 weeks HCV PCR RNA – UND.

    13 November 2015 at 3:23 am #3793
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    ok i have my eye on velpatasvir if the stuff i am taking doesn’t work. i would try and persuade greg or the doc to source a decent , reputable supplier. kindly

    13 November 2015 at 3:23 am #3794
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    No you can’t get Semiprivir separately. My gastroenterologist was initially open to the idea of prescribing it for use with Sof if I couldn’t get anything else and chucking away the interferon as it would still be saving the government money. But on reflection, he had concerns it might be considered fraud and then the comp access dac was available so it was a moot point. I was talking to someone from Hep NSW the other day and told them they should lobby for Semiprivir to be listed separately as it could be helpful in some hard to treat cases. Doubt they’ll do anything about it though.

    13 November 2015 at 3:29 am #3795
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I remember reading on Greg’s blog that Semiprevir is available on it’s own, from the chemist with a script from your doctor. So I dug it out, under Sept. 3:://hepatitisctreatment.homestead.com/hepatitis-c-treatment.html

    Perhaps the good doctor could clarify.

    13 November 2015 at 3:59 am #3798
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    I thought velpatasvir is the GS 5816 drug that has been trialed recently. All these “svir’s” getting me confused.

    13 November 2015 at 4:34 am #3803
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester
    Joy wrote:

    I remember reading on Greg’s blog that Semiprevir is available on it’s own, from the chemist with a script from your doctor. So I dug it out, under Sept. 3:://hepatitisctreatment.homestead.com/hepatitis-c-treatment.html

    Perhaps the good doctor could clarify.

    See here:

    http://www.pbs.gov.au/medicine/item/10197q-10200w

    Click on authority required. James has previously said he can’t prescribe it. Think he said that only 2 docs in Tassie could one of whom is my gastroenterologist at RHH liver clinic. If you look at the PBS entry including the “Note” section you’ll see there’s all sorts of hoops to jump through in regard to the prescribing of it.

    God I am so effing sick of typing with one finger on my left hand.

    13 November 2015 at 4:39 am #3804
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    What happened? Shouldn’t the cast be off soon? Did they do surgery?

    13 November 2015 at 4:40 am #3805
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Sorry all, I stand corrected. Didn’t realise you were still in plaster Chester. Good job! ;-)

    13 November 2015 at 4:44 am #3807
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hmmm very restrictive criteria Chester. And it must only be prescribed with Intf & Riba on the PBS – not helpful

    Hang in there em, I’m sure there’s a combo out there which will work. Lots of knowlegable people on here all looking our for you.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    13 November 2015 at 4:48 am #3808
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester
    klhilde wrote:

    What happened? Shouldn’t the cast be off soon? Did they do surgery?

    Comes off Tuesday thank god. I can use it for a lot of things but the cast won’t let my wrist flex so still not much good for typing.

    13 November 2015 at 4:50 am #3809
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    sorry about the difficulty but its for genotype 1. The GS 5816 is genotype 3, whatever kind of “svir” it is. kindly

    13 November 2015 at 4:57 am #3810
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Chester wrote:

    klhilde wrote:

    What happened? Shouldn’t the cast be off soon? Did they do surgery?

    Comes off Tuesday thank god. I can use it for a lot of things but the cast won’t let my wrist flex so still not much good for typing.[/quote]

    Good to hear you’re on the mend mate…once the cast is off you should improve. I had shoulder surgery 3 months ago but unfortunately have nerve issues now, looking at MRI/nerve conduction tests in Dec

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    13 November 2015 at 5:03 am #3812
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Your first problem with velpatasvir berri will be finding a generic maker who doesn’t need a script for it. Don’t think it’s TGA approved yet so no one in Oz will be able to prescribe it. Think the FDA has either just approved it or is close to doing so.

    13 November 2015 at 5:17 am #3814
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    Thanks, my current treatment is for 24 weeks. By the way I have been really struggling physically with this treatment. Couldn’t exercise as usual, nanny naps, particularly after eating so tired I had to sleep. Now at the 8 week mark. Complete change. Very strange. kindly

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