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  • 3 August 2017 at 4:28 pm #26678
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Been trying to write this for hours without getting anywhere…..so here goes.

    22 months ago I discovered FixHepC and was able to source generic DAAs to hopefully cure the HCV I had carried around for two thirds of my life, so I commenced a 24 week treatment due to cirrhosis and previous relapse. Unfortunately, as some will be aware, I was one of the small percentage that relapse post treatment. But thankfully the medications had reduced the virus to undetectable levels while using them which gave my liver a period of respite and significantly improved my physical and emotional health and resolved a lot of symptoms that I always thought due to age, etc.
    Knowing that wouldn’t last without SVR, at the start of this year I commenced my latest retreatment although I couldn’t bring myself to blog this here, possibly out fear of yet another relapse? or just silly superstition? Anyway it has been a long and somewhat delayed journey for me but today as I quietly held my breath my specialist informed me that my SVR12 results were.UNDETECTED.

    What a wonderful feeling of calm……..and such elation at the same time!

    A huge thank you to Dr Freeman and the rest of the FixHepC team not only for assisting me but also for their vision, care and most importantly for taking action to enable people around the world to access affordable HCV treatment. This one’s for you.

    https://m.youtube.com/watch?v=wj5VODa-eTY

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    3 August 2017 at 6:18 pm #26679
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll

    G…glad to hear and good for you! You are one of the main players on this forum.
    You have helped countless others with your wisdom and sage advice.

    All of us SVR’ers know what you are feeling now. Have a good stiff Scotch on me….e.

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    3 August 2017 at 6:54 pm #26680
    Lilyfield
    • Topics: 2
    • Replies: 23
    • Total: 25
    • Treatment Warrior
    • ★★★
    @lilyfield

    I may not post often, but Gaj, you have offered so much to all of us. I have followed you since I first found fixhepc and your posts contributed to my making the decision to order my “cure” from Doc Freeman.

    Congratulations!!!!!!!!!!

    3 August 2017 at 7:31 pm #26681
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Gaj,

    WOW, this is an excellent news, I am so happy for you! #woohoo!
    Congratulations for this wonderful result and for having continued the fight! You are a winner!

    Sometimes I have the feeling that we, the generic rebels, are somehow alone on this planet, so here is a funny video where the word “Eurovision” should be replaced with “against HCV” :)

    You might want to look at 1m35sec at the “victory dance” :D :D :D

    Cheers,
    RHF

    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    3 August 2017 at 8:52 pm #26682
    Avatar photoJ. Eugene
    • Topics: 1
    • Replies: 24
    • Total: 25
    • Treatment Warrior
    • ★★★
    @j-eugene

    This is outstanding news Gaj ….

    Could echo Lilyfield’s thoughtful response – will not forget all the help you provided me along the way.

    Just wonderful to hear that you made it this time around. Wow ….

    All the best

    J

    GT 1a (~1968)
    Diagnosed Non A/B ’85 – HCV ‘89
    Rebetron INF/RBV 17 months 2000 – Failure
    Infergen INF/RBV 11 months 2002 – Failure
    Viekira Pak + RBV 12 weeks 2015 – Failure
    VL Und at +3 weeks > EOT – EOT+12 weeks 2,240k
    Resistance Tests – NS5a Q30R
    SMV/DCV/SOF + RBV 24 weeks 2016
    VL Det <15 +2 and +4 weeks – Und +8 weeks > EOT
    SVR4, SVR12 and SVR24 Undetected

    4 August 2017 at 12:43 am #26683
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Best news to wake up to Gaj. We were treating at the same time last year- I knew this time it would be celebration for you- but I am an optimist. I know it’s not over, until it is, and now- after all those years, it really is over.
    And thank you so much for all your calm, wise kindness to all here, while you fought that dragon. #magic#
    Songs of freedom, Redemption songs, playing for change
    https://www.youtube.com/watch?v=55s3T7VRQSc

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    4 August 2017 at 2:11 am #26684
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    Gaj, Congrats!!! I hope to be joining you soon……… :)

    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    4 August 2017 at 2:19 am #26685
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Congratulations Gaj!! SVR 12!! :cheer: :+1:

    4 August 2017 at 2:57 am #26686
    Avatar photoIain
    • Topics: 7
    • Replies: 23
    • Total: 30
    • Treatment Warrior
    • ★★★
    @iain

    Great news Gaj, you’re a star.

    4 August 2017 at 9:55 am #26689
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Oh Gaj…I’m so happy to hear this news. You have been one of the people who has consistently set the tone of this forum with your respectful and balanced approach to people and information.

    Your constant and calm presence helped me, especially as I struggled with my own relapse and for that I thank you. Wishing you only the best my friend. :woohoo: :woohoo:

    4 August 2017 at 12:33 pm #26696
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Woohoo Gaj!
    I am thrilled to hear this news. It’s especially good to see another HepCer defeat the virus at second go.

    You’re one of the stalwart defenders of this forum against the bleakness that sometime threatens to swamp some of us. It is so heartening to see you doing well now. Congratulations

    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    5 August 2017 at 7:54 am #26711
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi everyone and thank you all for your kind comments. :blush:

    I just try to “pay it forward” for the kindness, care, wisdom and camaraderie that many of the members and guests of this forum have been generous enough to share with me and many others. All of you with your contributions (no matter their size) are the ones who make this place what it is so Thank You.

    Re_roll,

    Unfortunately I’ll need to skip the Scotch (and the wine :(). My liver was rather tattered when I arrived so for now my drink of choice(?) is Soda with a twist of lemon. But have one for me. :cheer:

    Splitdog,

    I’ll be waiting at the finish line to cheer you over it. :+1:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    5 August 2017 at 1:45 pm #26713
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Very very happy for you, Gaj. Wishing you continued good health.

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    6 August 2017 at 9:52 pm #26717
    Donna
    • Topics: 1
    • Replies: 70
    • Total: 71
    • Recovery Champion
    • ★★★★
    @donna

    Congratulations on your news Gaj x

    7 August 2017 at 6:16 am #26719
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    That’s great news to receive after having this virus for so long, well done mate.

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

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