Liver Conference Barcelona 2016

This topic has 45 replies, 21 voices, and was last updated 8 years, 8 months ago by Tina-Hill-facebook.

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16 April 2016 at 6:44 pm #15582
Gracie
- Topics: 0
- Replies: 2
- Total: 2
- Novice
@gracie
I’ve joined specially to say congrats on the great EASL/ILC presentation – I followed as well as I could on twitter. It sounded from tweets from people there like it gained great applause.

Well done.
16 April 2016 at 9:12 pm #15583
Johnboy
- Topics: 16
- Replies: 75
- Total: 91
- Guardian Angel
@johnboy
Fantastic.

http://i-base.info/htb/29936

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
17 April 2016 at 12:59 am #15587
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hi Gracie, Yes I was following while traveling, so not easy! but saw the tweet about great applause Tried to post a cool pic earlier, but it didn’t work on portable device, but Dr F seemed to get a fantastic response on Twitter and there in Barcelona .

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
17 April 2016 at 1:15 am #15588
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
Congratulations to all involved in the study, which is sure to have a big impact. Now anyone trying to get a doctor to support a prescription or monitoring can point to these results. And it will be cited again and again in price negotiations. Well done!

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
17 April 2016 at 1:57 am #15592
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
https://www.youtube.com/watch?v=l3i9ilHpPko

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
17 April 2016 at 2:12 am #15596
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
Such a good day with the news of James and others research on generic DAA’s, Ive been looking round on the Twitter feed and there is an enormous amount of support.

Here are some really cool pics of James and Andrew Hill enjoying some outdoor activities with a number of different Hep C activist groups.

SVR 24
17 April 2016 at 2:22 am #15597
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Thanks for the link Johnboy, excellent article.

From another press release:

“Our interim data suggests a potential solution for Hepatitis C patients in areas where treatment access has been restricted as a result of the high prices demanded for branded treatment,” said Dr James Freeman, of GP2U Telehealth, Hobart, Australia and lead author of the study. “At the price level of generic direct-acting antivirals, treating the entire global Hepatitis C epidemic could be financially feasible. Furthermore, if a patient is cured of Hepatitis C, there is evidence for improved survival, and lower risks of liver cancer and liver cirrhosis and cured patients could return to work, delivering further economic benefits to society.”

http://www.eurekalert.org/pub_releases/2016-04/eaft-lgd040816.php
17 April 2016 at 2:55 am #15600
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Congratulations to our team presenting at EASL Barcelona 2016. You have openly contributed to addressing a gap regarding accessing affordable meds. By broadcasting knowledge of generic treatment for hepc on the international stage you will save many more lives.

This is amazing and awesome. I read with real delight any reviews and information flow ons associated with your presentation. James, you have repeatedly said that DAA’s should be available to everyone. Your data provides verification and maybe the world will listen now.

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
17 April 2016 at 4:05 am #15604
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Thankyou for all the links James and other friends
Reading them all taught me even more useful information. Thanks for the photos to put an environment to the written words.
Some not so pleasant data of course but the overall stats are in our favour
Go us, the generic pioneers of this “challenged” game of life. I’m proud I bought my meds and lucky I could afford the FixHepC prices which are extremely reasonable and sane. To be UND so early was a major release after a long and nasty tx journey prior.
This data is so well presented and I love data. I am so into real percentages and stats not into anything else at this stage of the game.
The global number of carriers is so huge. It’s madness not to release the meds.
Thankyou again to James and Greg for all you have and do for us.
Happy travels
I’m sure only good can come from this
Ariel
17 April 2016 at 8:40 am #15618
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
EASLnews Retweeted
EASL Education ‏@EASLedu 14h14 hours ago
Massive applause from the audience for Dr. Freeman @ late breaker session #ILC2016 #HCV
10 retweets 7 likes
Reply Retweet 10
Like 7
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EASLnews Retweeted
Alessio Aghemo ‏@AghemoAlessio 14h14 hours ago
Generics for HCV treatment. Major breakthrough at #ILC2016 #makinghistory

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
17 April 2016 at 8:42 am #15619
Michael-Henry-facebook
- Topics: 9
- Replies: 39
- Total: 48
- Recovery Champion
@michael-henry-facebook
This is so great having this EASL Barcelona 2016 Conference .
I’ve lived in secret with HCV for 45 years, in fear of being judged.
These new DAA’s have given me a chance to get my life back.
Can we every thank James & Greg enough for all their work they’ve done.

AUSTRALIAN
HCV Genotype 1a
2003 Relapsed Peg Interferon / Ribavirin
Pre treatment VL 2,000,000
ALT 65, AST 42, ALP 111, GGT 56
Bridging F3-4
Treatment -24 weeks – Sof , Led with 12 weeks Riba.
4 weeks VL <12 Detected ALP 89 , GGT 21 , ALT 17 , AST14
12 weeks VL Undetected ALP 96, GGT 22, ALT 20, AST 20
24 weeks VL Undetected ALP 83, GGT 20, ALT 21, AST 14
EOT 6th April 2016
SVR 5 weeks VL Undetected ALP 81, GGT 31, ALT 22, AST 20
17 April 2016 at 4:25 pm #15656
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Short video with the doc, and report from a North American correspondent:

BARCELONA — Many people with hepatitis C (HCV) might be able to make an end run around the high prices for the new direct-acting medications by turning to low-cost generics, a physician said here.

http://www.medpagetoday.com/MeetingCoverage/EASL/57399

Lots of news reports in Spanish too.
17 April 2016 at 6:38 pm #15665
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
GENERICS!!!
on HCV News Blogspot!!

Generic direct-acting antivirals for hepatitis C virus infection Presented at International Liver Congress
Low-cost generic direct-acting antiviral treatment for hep C is equivalent to branded formulations

http://hepatitiscnewdrugs.blogspot.com/2016/04/generic-direct-acting-antivirals-for.html?m=1

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
17 April 2016 at 7:49 pm #15682
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
http://m.smh.com.au/national/health/generic-drugs-could-wipe-hepatitis-c-off-the-face-of-the-planet-doctor-james-freeman-says-20160415-go75rx.html

I googled Dr. Freeman, and found this news article

You look very young and smart in this photo

congratulation on the great presentation

I was so touched by your last words “Let’s deploy them and wipe Hepatitis C off the face of the planet, just like we’ve done with smallpox and polio.”

You made a progress for human-being !!

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
18 April 2016 at 1:08 am #15697
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Thanks Tina – They were the photos I was trying to post while on the road but small device wouldn’t allow (hence the ‘soap-box’ comment).

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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