Home Forums Main Forum Media & News Liver Conference Barcelona 2016 –

Viewing 15 posts - 31 through 45 (of 46 total)
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  • #15582
    Gracie
    • Topics: 0
    • Replies: 2
    • Total: 2
    • Novice
    @gracie

    I’ve joined specially to say congrats on the great EASL/ILC presentation – I followed as well as I could on twitter. It sounded from tweets from people there like it gained great applause.

    Well done.

    #15583
    Johnboy
    • Topics: 16
    • Replies: 75
    • Total: 91
    • Guardian Angel
    • ★★★★★
    @johnboy

    Fantastic.

    http://i-base.info/htb/29936


    G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015

    #15587
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Gracie, Yes I was following while traveling, so not easy! but saw the tweet about great applause :+1: Tried to post a cool pic earlier, but it didn’t work on portable device, but Dr F seemed to get a fantastic response on Twitter and there in Barcelona .


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #15588
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    Congratulations to all involved in the study, which is sure to have a big impact. Now anyone trying to get a doctor to support a prescription or monitoring can point to these results. And it will be cited again and again in price negotiations. Well done!


    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    #15592
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    https://www.youtube.com/watch?v=l3i9ilHpPko


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #15596
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Such a good day with the news of James and others research on generic DAA’s, Ive been looking round on the Twitter feed and there is an enormous amount of support.

    Here are some really cool pics of James and Andrew Hill enjoying some outdoor activities with a number of different Hep C activist groups.

    CgKbLXmWEAEY9CU.jpg

    CgKcD6gW4AALC1O.jpg


    SVR 24

    #15597
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Thanks for the link Johnboy, excellent article.

    From another press release:

    “Our interim data suggests a potential solution for Hepatitis C patients in areas where treatment access has been restricted as a result of the high prices demanded for branded treatment,” said Dr James Freeman, of GP2U Telehealth, Hobart, Australia and lead author of the study. “At the price level of generic direct-acting antivirals, treating the entire global Hepatitis C epidemic could be financially feasible. Furthermore, if a patient is cured of Hepatitis C, there is evidence for improved survival, and lower risks of liver cancer and liver cirrhosis and cured patients could return to work, delivering further economic benefits to society.”

    http://www.eurekalert.org/pub_releases/2016-04/eaft-lgd040816.php

    #15600
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Congratulations to our team presenting at EASL Barcelona 2016. You have openly contributed to addressing a gap regarding accessing affordable meds. By broadcasting knowledge of generic treatment for hepc on the international stage you will save many more lives. #love

    This is amazing and awesome. :) I read with real delight any reviews and information flow ons associated with your presentation. James, you have repeatedly said that DAA’s should be available to everyone. Your data provides verification and maybe the world will listen now. #flower


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #15604
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thankyou for all the links James and other friends
    Reading them all taught me even more useful information. Thanks for the photos to put an environment to the written words.
    Some not so pleasant data of course but the overall stats are in our favour
    Go us, the generic pioneers of this “challenged” game of life. I’m proud I bought my meds and lucky I could afford the FixHepC prices which are extremely reasonable and sane. To be UND so early was a major release after a long and nasty tx journey prior.
    This data is so well presented and I love data. I am so into real percentages and stats not into anything else at this stage of the game.
    The global number of carriers is so huge. It’s madness not to release the meds.
    Thankyou again to James and Greg for all you have and do for us.
    Happy travels
    I’m sure only good can come from this
    Ariel

    #15618
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    EASLnews Retweeted
    EASL Education ‏@EASLedu 14h14 hours ago
    Massive applause from the audience for Dr. Freeman @ late breaker session #ILC2016 #HCV
    10 retweets 7 likes
    Reply Retweet 10
    Like 7
    More
    EASLnews Retweeted
    Alessio Aghemo ‏@AghemoAlessio 14h14 hours ago
    Generics for HCV treatment. Major breakthrough at #ILC2016 #makinghistory


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    #15619
    Avatar photoMichael-Henry-facebook
    • Topics: 9
    • Replies: 39
    • Total: 48
    • Recovery Champion
    • ★★★★
    @michael-henry-facebook

    This is so great having this EASL Barcelona 2016 Conference .
    I’ve lived in secret with HCV for 45 years, in fear of being judged.
    These new DAA’s have given me a chance to get my life back.
    Can we every thank James & Greg enough for all their work they’ve done.


    AUSTRALIAN
    HCV Genotype 1a
    2003 Relapsed Peg Interferon / Ribavirin
    Pre treatment VL 2,000,000
    ALT 65, AST 42, ALP 111, GGT 56
    Bridging F3-4
    Treatment -24 weeks – Sof , Led with 12 weeks Riba.
    4 weeks VL <12 Detected ALP 89 , GGT 21 , ALT 17 , AST14
    12 weeks VL Undetected ALP 96, GGT 22, ALT 20, AST 20
    24 weeks VL Undetected ALP 83, GGT 20, ALT 21, AST 14
    EOT 6th April 2016
    SVR 5 weeks VL Undetected ALP 81, GGT 31, ALT 22, AST 20

    #15656
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Short video with the doc, and report from a North American correspondent:

    BARCELONA — Many people with hepatitis C (HCV) might be able to make an end run around the high prices for the new direct-acting medications by turning to low-cost generics, a physician said here.

    http://www.medpagetoday.com/MeetingCoverage/EASL/57399

    Lots of news reports in Spanish too.

    #15665
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    GENERICS!!!
    on HCV News Blogspot!!

    Generic direct-acting antivirals for hepatitis C virus infection Presented at International Liver Congress
    Low-cost generic direct-acting antiviral treatment for hep C is equivalent to branded formulations

    http://hepatitiscnewdrugs.blogspot.com/2016/04/generic-direct-acting-antivirals-for.html?m=1


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #15682
    Avatar photojay kim
    • Topics: 3
    • Replies: 48
    • Total: 51
    • Recovery Champion
    • ★★★★
    @jay-kim

    http://m.smh.com.au/national/health/generic-drugs-could-wipe-hepatitis-c-off-the-face-of-the-planet-doctor-james-freeman-says-20160415-go75rx.html

    I googled Dr. Freeman, and found this news article :cheer:

    You look very young and smart in this photo :P

    congratulation on the great presentation

    I was so touched by your last words “Let’s deploy them and wipe Hepatitis C off the face of the planet, just like we’ve done with smallpox and polio.”

    You made a progress for human-being !!


    hep-c for 20yrs.
    GT1a. Started twinvir(sof-led) 05/03/16.
    Before tx: VL=1.7mil. AST, ALT in normal range
    2nd week of tx: VL <15. AST, ALT in normal range
    6th week of tx: VL < 15. AST, ALT in normal range

    #15697
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Tina – They were the photos I was trying to post while on the road :) but small device wouldn’t allow :+1: (hence the ‘soap-box’ comment).


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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