no longer furtively reading posts here, joined Redemption trials

This topic has 22 replies, 11 voices, and was last updated 6 years, 11 months ago by Hazel.

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5 March 2017 at 2:44 am #25503
Mnem
- Topics: 3
- Replies: 101
- Total: 104
- Guardian Angel
@mnem
For more than a year I came as a guest to this site to read the posts. I couldn’t see my way to actually getting the treatment. It took months to make up my mind to act. The greatest barrier was disclosing to having HCV. That is because I am a healthcare worker and have seen others with HVC (who like me have roles in which transmission is impossible) negatively discriminated against in our workplace.

After disclosing the HCV to my family doctor who urged me to see a specialist the hepatologist in turn organised a fibroscan. That fibroscan showed little cirrhosis and the liver function test (scan & tests all free thanks the New Zealand taxpayer-funded healthcare system) results within normal boundaries. Possibly these good results because of avoiding alcohol, smoking and other drugs as part of trying to maintain good health. Also genotype 2 is the most benign type of HCV. Maybe though I was just lucky.

Once I received all the test results I enrolled in Redemption trials. Now I am on treatment and wondering why it took me so long.

G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
5 March 2017 at 3:12 am #25504
Paul-Jarman-facebook
- Topics: 8
- Replies: 373
- Total: 381
- Guardian Angel
@paul-jarman-facebook
Welcome Mnem glad you made it and have started tx given your numbers you should have a successful outcome

cheers

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
5 March 2017 at 7:04 am #25505
Dr James
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- Guardian Angel
@fixhepc
Welcome Mnem, best of luck with the treatment.

YMMV
5 March 2017 at 1:37 pm #25507
Tina-Hill-facebook
- Topics: 28
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- Total: 733
- Guardian Angel
@tina-hill-facebook
Hello Mnem,

Like you I am a healthcare worker from NZ who had hep c so I can truly appreciate and identify with the implications, stress and stigma you experienced when you first found out. For those of you that are unaware healthcare workers (in most instances) have to disclose their status of a communicable disease to their employer and worse still may face having to be stood down from their role. Stigma surrounding HCV in healthcare is as ever present as it is anywhere – and in some cases much worse.

In November 2015 I first found out about generic treatment and in December I flew to Tasmania to collect a 12 week course of sof/led. I finished treatment in Feb 2016 and I was still detectable however I went undetected 4 weeks post treatment and have remained that way since reaching SVR 24 in early August.

I want to wish you all the best and every success for your journey and go you for getting off the fence and taking matters into your own hands. I hope your hepatologist are being supportive with your choice…If not please refer them to the NZ Hepatitis Foundation as they endorse the use of generics sourced via Fix Hep C, there are also many articles/features in the Talking Hep C publication that take doctors and specialist through the generic pathway.

SVR 24
6 March 2017 at 7:07 am #25512
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Great choice, you’ll be HCV free in a few months. The stigma of HCV over rides the excitement of the cure, to other people. I had only shared it with wife of 26-7 years so it was bitter sweet. Keep on keep’ n on you’ll get it done
In good health to you.

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
9 March 2017 at 9:06 am #25542
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Mnem,

The stigma of this disease can be such a burden and I can relate to the stress placed on people in healthcare and similar industries. Well done you for taking control and starting treatment. Good luck – things are lined up for a great outcome for you.
29 March 2017 at 7:06 pm #25703
margie
- Topics: 0
- Replies: 2
- Total: 2
- Novice
@margie
Could someone help me. I want to purchase the meds for hep c. I am very new at this and just want to be cured. I live in the us will they ship to the us
29 March 2017 at 8:41 pm #25704
Mnem
- Topics: 3
- Replies: 101
- Total: 104
- Guardian Angel
@mnem
Hi Margie, yes help is at hand. Keep looking for the right threads on this site. There is a search function on one of the tabs at the top. Also the index tab. Take a look at the link in this piece (re.) posted by our fellow Forum member, Iain recently:

A nice article written by Lucinda Porter regarding importing generic HCV medication to the U.S.A, and FixHepC.

Apologies if this has already been posted previously.

hepatitisc.hcvadvocate.org/category/generic-harvoni

G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
29 March 2017 at 9:19 pm #25705
margie
- Topics: 0
- Replies: 2
- Total: 2
- Novice
@margie
Thank you. I am just so confused on what to do
30 March 2017 at 12:32 am #25707
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Hello Margie,

Just go here on this site

http://fixhepc.com/home/redemption-etrials.html

And select the appropriate link for the medications you want and fill in the form.

It’s that easy

YMMV
5 May 2017 at 12:59 pm #25981
Mnem
- Topics: 3
- Replies: 101
- Total: 104
- Guardian Angel
@mnem
Feeling thrilled Here I am today with the results from my end of week 4 treatment – HVC rna UNDetected.

How fortunate I am, Next I keep on taking the pills until the end of week 12. More tests still to come, yet I am on my way to the holy grail of SVR12 and 24, and feeling hopeful. Thank you to everyone on this forum for your kind words and encouragement

G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
5 May 2017 at 11:23 pm #25986
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
Can’t get better than that for week 4, Mnem! Think of all that dead virus you don’t have to provide a home for, ever again.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
6 May 2017 at 3:02 am #25988
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Congratulations Mnem! Undetected!
7 May 2017 at 10:20 am #25996
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Quick work Mnem! You’re off to a flying start….
8 May 2017 at 4:15 pm #26003
mgalbrai
- Topics: 28
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- Total: 1,326
- Guardian Angel
@mgalbrai
Congratulations M!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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