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You said it Sirch, that’s the truth that
I’m not a hero
I’m just a person and a parent who got a shit illness somehowGrateful yes hero no
thats way too fancy a tag or badge for me a hero
Truly just thankful that’s all
At least it wasn’t that other stuff again
Survival of that was possibly a miracle if these labels are to be appliedTake care all and thanks to the real hero: that’s the Doc who set this up and released me and you and all from the illness
AIt might be all are right
. It depends from the perspective we look at these words. (Wikipedia says) Moral courage is the ability to act rightly in the face of popular opposition, shame, scandal, discouragement, or personal loss.
(Wikipedia says) A hero …. is a person or main character of a literary work who, in the face of danger, combats adversity through impressive feats of ingenuity, bravery or strength, often sacrificing his or her own personal concerns for some greater good.To me, whenever I think at those who helped me get treated with generics (Dr. F,, Greg, my RO doctor, you guys from here who took the risk to freely talk about hep C and generic drugs) I see them as heroes, my heroes. When I think at me however, I do not see myself with this “hero” label, rather I see myself as a person who (finally) had some courage and decided to took life into own hands and get treated despite the opposition or my perceived of opposition related generic drugs.
Trying to think from a doctor’s perspective ( I am not, but for this exercise I will pretend I am
), seeing a patient getting through the IFN+RIB treatment or deciding to take control on the own life and be a signal for the others patients, might be seen also as an heroic behavior. No matter if we regard this as heroism or courage, IT DOES SAVE LIVES AND BRINGS THE SO MUCH NEEDED HEALTH !
Hats off !!!!
Ty Doc for the props
Yep that was a bungee jump into the abyss that old tx you are correct in my personal case
BUT
I’M WITH THE VIBE HERE
THANKS TO THE FHC TEAM
We are free!!This ones for you and I sing this old fave with a new outlook now THANKYOU
Hero hmm now you put it like that
I dunno Doc I think were just sick of being sick
ick:' /> cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
My sentiments lie with everyone else who has answered your comment Doc!!!
You are so unique and what you have undertaken to do has allowed us all to help ourselves get well through one combination or another. For many, feeling ill from this virus for years and often decades was all too obviously devastating and for some we did not even realize just how bad we felt until we started to feel oh so much better. Looking back I cannot believe how I simply accepted what was happening and waited and waited! This is what happens all too often in all kinds of situations. People end up so apathetic to what is going on, feeling helpless to do anything. You have shown us all that if you really believe in something and have the ability to change things then you find a way. Without you and as someone else has said, those who work with and alongside you none of this would be a reality! My thanks and admiration are added to everyone elses on here!
You are our hero!!
all my lovexxxxxx
Nadia
by the way how do you add songs to these posts I am so bloody useless when it comes to working things out takes me ages of messing about and wasting so much time I give up pathetic I know!!!!
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hello Nadia,
great thoughts, thank you.
It made me think on some maths:
– I was one of the patients being sick more than 13 years (perhaps 20 or 30, but I am not sure).
– currently, in my country, only 1.5% of the HCV patients have the tiny chance to get treated next year (about 10 000 out of 600 000) via the NHS.
– I was one of the others 98.5% who did not qualified for the treatment (you may also say I was outside the system).
– One day, a stranger, an Australian (Greg Jefferys) made a trip to India, got treated with generics and … shared his story. In only one year his story inspired others ( thousands I would say), me included.
– One other day, a doc founded FIXHEPC, a place from where many people (tens of thousands I guess) already got useful information and thousands of them got treated. For sure other tens of thousands will follow soon. Perhaps next year we will be talking about millions ?
– Each of the thousands who got already cured or are currently under treatment let the people around them know about the generic drugs (one tells perhaps to other 10 people, 20, 30…..about the generics). Try to multiply these numbers to see where you get ….Maybe for someone who never got sick with this disease or another difficult one, the numbers from above are simply numbers.
But when you’ve been through this ugly disease and got cured, you cannot stop thinking how meaningful it was what those (few) before you did and how it will change in good the life of others (many) in the future…..Words cannot properly describe how this feels, but gratitude is one of it.Cheers,
RHF
Hi RHF,
the maths as you say blows me away it is phenomenal and word of mouth so works in this situation. Coming here for info the first time was truely helpful and well that Australian you talk of wow an inspiration right?!!!! The second time I came was after the Redemption trials had already started I couldn’t believe it had all been put together in a way that made it really accessible to all. Just the thought that you could do something yourself with a little help from your friends and not be dependent on if your name and number came up or not was a good feeling gave one some self esteem and massive hope for the future.Ok yes monies comes into it but you just know that somehow you have got to do it, the amount is a small price to pay for ones health and well being. I don’t want to sound flippant it is still a lot for those with little, I know from personal experience as do others!!!. There were people also very dubious about the whole thing, having experienced rip off merchants or simply wary of anything that seems outside the norm. Personally speaking, I have spent much of my life on the edge of what is perceived the norm so once I read the forum and all the incredible people on here telling their stories and spoken to a few people at GP2U and FHC it was as clear as anything that this was the place to come and get well. No-one sits in judgement. There is a blanket of support around people from others who know how it feels and those who have the awareness to understand how important it is to treat the terrible virus before it does its worst!
I will certainly do whatever I can to spread the message to others. The NHS hospital I have attended the past 20+ years has slowly begun to treat patients who are not so desperately close to end of life situations but there is still a tight quota I believe and in the meantime there are still many totally unaware they even have this monster in their bodies. My understanding is the numbers are enormous but one never hears much about it certainly not in the media here in the UK. I remember many years ago a TV programme I think the title was ‘Bad Blood’ what a shit title!!!! No wonder people hid it away from those around them. Whew apologies for the soapbox. I will jump off it now!
Word of mouth is definitely the way to go when possible and I will make every effort to open mine at every opportunity
love and hugs
Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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