Viewing 15 posts - 1 through 15 (of 15 total)
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  • #13165
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    Lately I’ve been subject to a series of personal attacks on this forum by Sirchinenge, who is a moderator. These attacks include general rudeness, my subject matter has been ridiculed and my mental health has been questioned. I have never before seen this kind of behaviour by a moderator on a forum.

    If I have been guilty of somehow transgressing the forum rules or standard of behaviour then I would be grateful if that could be pointed out to me. If I am at fault then I would expect to be issued with a warning, detailing the grounds for that warning. I would not expect the kind of personal attacks by a moderator to which I have been subjected.

    I am referring in particular, but not exclusively, to the posts by Sir on this thread:
    http://fixhepc.com/forum/viral-load-results/765-quantitative-pcrs-with-lloq-missing-uk/12166.html

    For the forum to be a safe place to visit and to contribute, I feel that behaviour like this from a moderator is unacceptable. So I call on Sirchinenge to issue me with a warning and tell me how I have breached the forum rules, or step down as a moderator.

    With the powers of a moderator comes also the responsibilty.

    dt

    #13166
    Avatar photoEnkel
    • Guardian Angel
    • ★★★★★
    @enkel

    Alsdad is not anymore in this forum due to Sirchinenge.


    Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
    Started Twinvir 12/12/15.
    Two weeks
    ALT 17 at 2 weeks
    Viral Load UND at 2 weeks
    ALT 13.5 at 7 weeks EOT
    ALT 10.5 at 15 weeks EOT
    ALT 13 at 27 weeks EOT, VL UND, Cured

    #13167
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi DT,

    Thanks for posting.

    Having read the thread I can see how you might feel that way.

    To me your question was perfectly valid and Sir’s response was rude. We all have bad days.

    That might well have been the end of it but you did then throw a rock back with:

    Hi Sir,

    Have you just caught up with this conversation? – a day late and a dollar short, as they say.
    Maybe get yourself into the ballpark first, then we’ll have something to talk about.
    dt

    And it looks like the bickering continues from there. Sir did have a valid point in that not detected does deserve a dancing banana.

    #woohoo!

    To answer the original question:

    I’ve now seen well over 2000 HCV RNA results from almost every lab in the country.

    Some report at HCV quantitative like this

    HCV RNA <15
    log < 1.18 And then go on to add: Comment: Undetected (by mostly COBAS Taqman) Some report it like this: HCV RNA N

    N = Undetected

    Some like this:

    HCV RNA < 15 COM1

    COM1: Not detected

    There are quite a few styles and skipping writing <12 <15 <25 or <30 when it is undetected is not that uncommon.

    Undetected itself really just means <5 (depending on the test).

    I did see one the other day that said something like "Quantification not done due to HCV RNA not being detected" which seemed a pretty sensible way to report it.

    Personally I prefer the ones that cut to the chase and just say undetected rather than requiring me to read the <15 and then the comment.

    Anyway, I think you've been here long enough to be made a moderator too so take care with the extra buttons. The pay is terrible and the hours are awful.

    We're a mixed bunch and it's highly stressful wondering if you're going to draw the short straw at SVR time. I've enjoyed a lot of your posts and would hate to see you go or not feel welcome. Maybe you and Sir could agree it was not the finest hour on the forum and both decide to move on?

    I would be willing to bet that if you and Sir did the personailty test here:

    http://www.humanmetrics.com/cgi-win/jtypes2.asp

    You would fall at polar opposite ends

    Me, I'm an INTP

    INTP
    Introvert(38%) iNtuitive(62%) Thinking(53%) Perceiving(34%)
    You have moderate preference of Introversion over Extraversion (38%)
    You have distinct preference of Intuition over Sensing (62%)
    You have moderate preference of Thinking over Feeling (53%)
    You have moderate preference of Perceiving over Judging (34%)


    YMMV

    #13172
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Enkel, if you’re gonna make an accusation at least be factual.

    Al and I had a conversation in a thread I posted HepC’s not my position about the
    subject and I said if he did not agree maybe he should leave.

    He flounced nothing to do with me at all.

    Man, I’m another person in a long line you have to complain about its funny you never seem to think you Might be
    in the wrong ,you just blame everyone else.

    Yea, I’m happy to step down I certainly have nothing too say sorry for.


    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    #13176
    Avatar photodarbara
    • Guardian Angel
    • ★★★★★
    @darbara

    <25 was mine 4 weeks, the doc said its UND the treatments working GREAT this was after 27 pills


    Treatment naive
    F 3/4
    Genotype 1 a & b
    V/L 17 MILLION
    Started Harvoni 11th Dec 2015 for 12 weeks
    4 weeks VL UND
    6 WEEKS ALT 32, AST 34
    EOT 03/03 2016 ! UND
    ALT 34, AST 26
    04.04.2016 SVR 4
    26.05.2016 SVR 12
    16.08.2016 SVR 24

    #13183
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    :(


    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    #13191
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    :( :blink:
    This is great medicine and we are the first global cohort, apart from early trials.
    Ty for my meds
    I didn’t like that threads tone in places either, it was challenging to try to turn it around to a positive, and don’t think it is nice to see this here….remember we are blessed to have tx at all; ty James for this fantastic opportunity to cure us, in my case my goal is to attract people to this cure not to scare them.
    Have a great day and smell the roses
    Ariel #flower

    #13205
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    ”James-Freeman-facebook” wrote:

    Hi DT,

    Anyway, I think you’ve been here long enough to be made a moderator too so take care with the extra buttons. The pay is terrible and the hours are awful.

    I would be willing to bet that if you and Sir did the personailty test here:

    http://www.humanmetrics.com/cgi-win/jtypes2.asp

    You would fall at polar opposite ends

    Me, I’m an INTP

    INTP
    Introvert(38%) iNtuitive(62%) Thinking(53%) Perceiving(34%)

    Hi DT, congratulations on your “promotion”!

    James, do you realise that according to that personality test you scored 187%, and are therefore “super-human”!?

    Anyway, just for a bit of fun, and perhaps to avoid future heated arguments, maybe we should all post our own personality test results? So here are mine:

    Extravert: 3%
    Intuitive: 56%
    Feeling: 12%
    Judging: 1%

    This comes to only 72%, so obviously I am lacking certain key skills…

    ps. yeah, I know, I should probably read the numbers differently (judging 1%, non-judging 99%, etc.). But why don’t they explain their scale of measurement and lower limit of quantification?

    I think I should really be Judging = UND.

    pps. And “extravert” should be spelt “extrovert”…

    Cheers,

    Vororo (28% nit-picker).


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #13207
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Ah, if in doubt RTFM. Now I understand.

    I am “ENFJ”:

    You have marginal or no preference of Extraversion over Introversion (3%)
    You have moderate preference of Intuition over Sensing (56%)
    You have slight preference of Feeling over Thinking (12%)
    You have marginal or no preference of Judging over Perceiving (1%)

    Still, liked the idea of Judging = 1%. A good principle for everyone here on the forum… :)


    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    #13208
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    There is a Report button the norm is you report and its looked at there is no need to start a thread
    suggesting you’re the victim of some broad attack.

    Enkel, without the likes of me you’d never had someone like Parvez selling generics on this site I put a lot
    of my personal time and energy into ensuring you and anyone else got safe access to generics
    don’t let that get in the way of you posting allegations that have no factual basis. Based on DTs logic I should ban you!


    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    #13213
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Perhaps a reread of this important statement of the Forum’s purpose and basic principles is appropriate at this point.

    http://fixhepc.com/forum/welcome/368-this-forum-is-censored-only-for-spam.html

    I would just like to comment that while “warts and all” is appropriate for the HCV part of discussions, and I personally quite enjoy the thrush and parry of discussion, we all need to be mindful of differing sensitivities of others to what is robust debate and what is personal attack.

    I would hope this forum remains an open and welcoming place for discussion, where members can feel safe to express their personal experiences and considered opinions while guests and new members feel they can join and participate without fear or favour.

    As noted, we have a Report to Moderator button at the bottom right of each post which goes to all mods and seems to work well for Spam but I would hope doesn’t require too much use for members posts.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #13232
    Avatar photokenbasman
    • Guardian Angel
    • ★★★★★
    @kenbasman

    My .02. Some types of conversations, for me, just don’t work in forums or emails. Whenever I feel like what I need to say could come off as offensive or hurtful I try and find a different medium for the conversation and I have learned this the hard way. A skype call usually can quite often take the edge off of a conversation which is going down the tubes. Something to do with the one sidedness of the points being made in a forum/email/chat methinks. I have salvaged various situations, to the point of realizing that the person I felt like strangling is a great person once the conversation became a real time back and forth discussion.


    HCV 35 yrs G1a F3 Tx naive
    started Lesovir-C 15/12/2015
    pre tx: VL 5,250,000 ALT 374 AST 208
    FIBROSCORE 10.4

    4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18

    #13234
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    You’re absolutely right kenbasman.

    Texts/emails/posts all lose the non verbal nuances.

    It’s best to cut your losses in some circumstances. I can remember having a robust conversation with another programmer called Abigail that ended like this:

    Abigail: I am consigning you to the but bucket {kerplunk}


    YMMV

    #13284
    Avatar photodointime
    • Guardian Angel
    • ★★★★★
    @dointime

    Anyway, I think you’ve been here long enough to be made a moderator too so take care with the extra buttons. The pay is terrible and the hours are awful.

    Doc Freeman,
    Thanks but I don’t want to be a moderator. Could you undo it please?
    Best wishes
    dt

    #13285
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Sure thing.

    I’m locking this thread now.

    I think enough has been said.


    YMMV

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