FixHepC - Party Playlist

This topic has 1,207 replies, 50 voices, and was last updated 3 years, 3 months ago by Sven.

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25 June 2016 at 2:10 pm #19933
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
http://youtu.be/nrCpOtAX5bM
26 June 2016 at 8:39 am #19951
GT2
- Topics: 1
- Replies: 293
- Total: 294
- Guardian Angel
@gt2
[video]http://https://www.youtube.com/watch?v=LZFO8pXuRTk[/video]

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Na√Øve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂
26 June 2016 at 6:11 pm #19959
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
https://youtu.be/eu_oTh04u3c

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
27 June 2016 at 2:29 am #19968
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Loved that Matt ty

I’m fixed now (so thankful for tx) but it’s a tiring business is HepC and I don’t think anyone who’s put up with it for however long will argue that one! So this is for those really worn out days people have during this thing, because we all have them no matter what stage of the ride we are on.

Try a little tenderness
27 June 2016 at 3:57 am #19969
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Thanks Ariel, we saw him in a very small venue in Seattle, Washington, drove 71/2 hrs to get there, got lost and only saw the last 30min. He was great, but we were really bummed we missed most of his show. After the show, he was signing CDs and just being friendly with the people in line. When we got up to where he was signing the CDs we handed him ours and told him how sad we were at missing the better part of the 1st half of his show and how my wife really wished she could’ve heard him do “Listen to the Mocking Bird”.
Well, he reached out and took my wife’s hands and sang it A Capella to her … the entire song !!! Since the crowd was already on their feet, he got an impromptu standing ovation and my undying gratitude for rescuing me from a cold and silent trip back home
This ones for you and all those you dedicated that last Otis Redding song to. (He’s one of my all time favorites btw.)
FYI, it’s not the sentiment of the song itself … rather, it’s the thought of the title. So, no offense or ill intent meant
http://youtu.be/bXNXPgprl18

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
27 June 2016 at 12:50 pm #19982
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
New Marlon Williams song, pretty incredible. He is singing to the river he identifies with, is Maori custom/tikanga

http://www.radionz.co.nz/national/programmes/nat-music/audio/201805890/marlon-williams-in-session

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
28 June 2016 at 4:11 am #20023
Meg
- Topics: 3
- Replies: 92
- Total: 95
- Guardian Angel
@meg
His voice and spirit are extraordinary ! So happy you introduced him to us Hazel. Thank you.

Blood transfusion in 1992 – Diagnosed in 2007
Tx naive -G1b – F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs – Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 – ALT 10 – GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 – ALT 8 – GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 – ALT 5

SVR 14 Virus UND (November 12th)
28 June 2016 at 7:07 am #20036
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
A bit of Belinda

https://youtu.be/2Js_WUsXpxg

SVR 24
28 June 2016 at 7:47 am #20041
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Still ridin’ on that “Freedom Train” this time on the “Grand Funk Railroad”
https://youtu.be/NxcOxvEsE_Y

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
29 June 2016 at 1:37 am #20082
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
This may well be in this thread already

And I posted the Bob Marley Redemption Song but I like this too… it is the flip side to globalisation, like I see here.

https://www.youtube.com/watch?v=55s3T7VRQSc&index=6&list=RDEMPu5npKYjBQbYJlm-cabI9g

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
30 June 2016 at 11:22 pm #20198
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Belle & Sebastian are one of my favourites and I’ve never seen them performing this.
https://m.youtube.com/watch?feature=youtu.be&v=UYttvaxFV1A

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
1 July 2016 at 8:09 am #20228
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
Meg wrote:

His voice and spirit are extraordinary ! So happy you introduced him to us Hazel. Thank you.

The river is famous because nearly all the ponamu/ jade, that is the most prized thing, comes from there, bottom of the South Island. And he is singing about Tina’s great great grandfather, the most famous warrior Chief of the 19th or any century, Te Rauparaha, going down there and taking loads of ponamu off the locals.

Here is something different for people doing ribavirin: Insomnia
https://www.facebook.com/RossKempFanClub/videos/10153374015231386/?pnref=story

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
2 July 2016 at 12:17 am #20263
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
The cure for all the stresses of life,more so if you don’t drink…..

https://www.youtube.com/watch?v=lw6qxDPmOGM

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
2 July 2016 at 1:10 am #20264
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Seal was trying to find his hotel in Montreal, Canada Saturday, when he happened upon a singer who was minding his own business, playing songs on the street for the public.
https://youtu.be/fYpsr0wGcHM

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
2 July 2016 at 1:43 am #20265
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Saw that one too pat1… Actually made the national news cycle.
Just last night we saw these guys in the same, small, indoor venue as last year, when their outdoor concert was called on account of rain. Ha! Rain? In Oregon? Go figure. They were great last year and have only gotten better since … Hope you all enjoy as much as we did.
https://youtu.be/WOj3975h5a8

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
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