Hello to all my future friends

This topic has 28 replies, 17 voices, and was last updated 8 years, 4 months ago by Greedfighter.

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7 July 2016 at 4:42 am #20592
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Starting Harvoni in two days….so glad to have found all of you! I have been reading like crazy!!!

I’ve really been worried because I’m getting some bad symptoms now, and I have no health insurance (another discussion about that later…. I was ready to go through a Redemption trial, but my (new) hep doc wouldn’t have any of it. Instead she had me apply for the Harvoni Support Path Patient Assistance program, which to my complete and total surprise, approved me (within 3 hours of faxing in the application!) I have been approved for 24 weeks because I am TX experienced (X 2) and because I have now entered cirrhosis.

I want those of you in the US to know that this is possible 1. If you have no insurance (the doc told me they they turn down those with crappy insurance, they don’t want to deal with ins. companies) and 2. You make under $100,000 a year for a family of up to two (similar guidelines for families). You have to have a doctor to monitor you. Just like with Redemption, you’ll need labs and possibly tests, prior, during and after.

I am absolutely astonished that this is happening for me. I have hated Gilliad for so long, and still do, but in some bizarre way their greed is benefiting me. I will now become part of their marketing spin. I feel so lucky, but at the same time I’m so angry that they are holding everyone hostage.

Anyway, in the end, I’m glad I’ll finally be getting my hands on it, and hope that some of my Americans neighbors out there can do the same. It’s on the Gilliad site – Support Path. BTW, I was still going to do Redemption if I was turned down. TG for Dr. Freeman.

All the best to you, and looking forward to ‘meeting’ you!
7 July 2016 at 5:09 am #20594
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Welcome Semisweet! So good to have you on board!!!

Fitz
7 July 2016 at 5:09 am #20596
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Edited. Duplicate post deleted,
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7 July 2016 at 5:36 am #20610
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Hi Fitz!

Waving!!!!
7 July 2016 at 5:53 am #20611
Sven
- Topics: 6
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- Total: 333
- Guardian Angel
@sven
I was in the gilead support path and under the $100k threshold of income, after and during getting turned down by my insurance company. However they would only allow me 1 month assistance with the balance of over $50k out of my pocket. We applied to gilead 3 times and each time it was rejected. If you are working and not totally indignant they want your money, and a lot of it. The final time was their last time and they came back with this…. I only needed 8 weeks due to my viral level, but their assistance was then only going to be 20 days, leaving me with over $35k in debt. My doctor said no as he believes I needed 12 weeks and he said if you do it with them and your not UND after 8 weeks you’ll be stuck with an extra $28k which would put me at over $55 k again. They knew what they were doing.
I think you hit a good day as most are turned down. Also after my doctor read the GP2U trials and concise information, he said ” go for it”. I did and received my medication today!!’
So good luck and your wish was granted but to most people it would be denied 100% unless you have money to spend. Gilead is not a stupid company, justI incompassionate and extremely greedy.
In good health to you.

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
7 July 2016 at 9:07 am #20620
Ariel
- Topics: 3
- Replies: 1,060
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- Guardian Angel
@ariel
Wishing you an excellent treatment Semisweet and hi from Australia!
Sending Goodvibes for the very best outcomes for you
All the mods and friends have lots to share so if you need just sing out and a mod will always assist in things such as if you need to chat to a doc or if it’s just an average side effect because we all respond with different sides none too awful but always check in for great support
Love from Ariel
7 July 2016 at 9:14 am #20621
Tina-Hill-facebook
- Topics: 28
- Replies: 705
- Total: 733
- Guardian Angel
@tina-hill-facebook
Hi SS hello back and nice to have you here congratulations about treatment at long last.

SVR 24
7 July 2016 at 11:18 am #20628
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hi ss from not sunny Sydney Australia.

I am also an indirect beneficiary of Dr Freeman’s wonderful work and recently completed Tx on greediad Harvoni.

Minimal side effects and started feeling much better right away. VL UND at end of treatment (EOT) and waiting for the 12 week result in September.

Please let everyone know how you are going

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
8 July 2016 at 5:49 am #20685
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Hi Sven,

So very sorry to hear how they treated you. I hope they lose their a$$es once generics are accepted by the medical community. I’m glad that in the end you DID get your meds, and again TG for Dr. Freeman. He gives hope, something that has been out of our reach for so long.

It seems we are starting our journeys at very near the same time. We’ve had different paths lead us here, but hopefully we will both end up in the same place- cured!!!

All my best,

semi
8 July 2016 at 6:00 am #20686
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Hi back to beaches, Tina and Ariel!! So glad to meet you!

I am lucky that I have supportive family and friends, but it’s not the same as someone who has lived it. It is incredibly comforting for me to know you are all here.

semi
8 July 2016 at 7:59 am #20694
cheese
- Topics: 2
- Replies: 54
- Total: 56
- Recovery Champion
@cheese
HI Semisweet from a fellow American just back to Boston 24 hours ago from long residence in Asia. Also non insured and never thought I would have a chance to get tx in the US so am on generics 4 weeks now with liver tests back to normal and big viral load decrease.

Very happy you got your Meds

There is a saying in India, that every grain of rice has someone’s name on it and I guess those precious Meds had semisweet on them. All the best to you on your journey to SVR.

GT 1a
VL 4.9M
F0-1
Since Late 60’s
Meds Cipla SOF/LED
Start June 7, 2016
8 July 2016 at 8:24 am #20698
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Cheese, you made me cry. Hugs to you!

Tomorrow is DAY ONE!!!!!!! I’m excited, I’m nervous, and I’m sooo ready to start!!!. Woo Hooooo!!!!
8 July 2016 at 8:42 am #20700
cheese
- Topics: 2
- Replies: 54
- Total: 56
- Recovery Champion
@cheese
So very happy for you starting your tx

I’m teary eyed now but it’s all good

GT 1a
VL 4.9M
F0-1
Since Late 60’s
Meds Cipla SOF/LED
Start June 7, 2016
8 July 2016 at 9:07 am #20701
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
Awesome! Good luck to you.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
8 July 2016 at 10:18 am #20706
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hi SemiSweet from the Uk
Best of luck for your treatment.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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