Home › Forums › Main Forum › FixHepC Admin › FixHepC Buyers Club Nodes › Would you like to be part of a social movement?

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  • 3 October 2015 at 10:42 pm #1744
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Yes, you can announce your forum here if you’d like same go’s with talking to your FB group.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    3 October 2015 at 11:05 pm #1745
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Ok. I’ve set a forum up more as a backup to this place than anything else. Should something happen to the fixhepc forum (and make no mistake: Big Pharma will be trying to make something happen to it) we will have somewhere to re-group. The people managing this resource will be welcome to the same management access to my new forum. In fact, being the tech neanderthal that I am, I’d appreciate the help/guidance.

    At the moment it’s here:

    http://killthedragon.freeforums.net/

    But if it starts getting traffic, I’m going to move it behind a premium secure server, where it will be found under this domain name:

    http://www.killthedragon.co.uk

    3 October 2015 at 11:18 pm #1746
    Avatar photoNadia
    • Guardian Angel
    • ★★★★★
    @nadia

    I like the name, Alsdad.

    Virus not detected from 14.10.2015

    4 October 2015 at 12:35 am #1751
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Nice one Alsdad.

    I’ve already seen you doc. So you know Chester’s hep c air BnB is up and running for anyone who needs it. :)

    4 October 2015 at 1:28 am #1756
    Avatar photoJolie
    • Guardian Angel
    • ★★★★★
    @jolie

    hi,
    I had a little pick into your forum,
    well done !
    I really hope none will shut this one down, I don’t think we’re are such a threat to big pharma, or are we???

    Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
    Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
    5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
    5 weeks HCV PCR RNA – UND. – down from 2 ML
    9 weeks HCV PCR RNA – UND.

    4 October 2015 at 1:36 am #1757
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Alsdad, sent you a chat message, please read.

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 October 2015 at 4:15 am #1761
    Avatar photoVicki
    • Topics: 5
    • Replies: 40
    • Total: 45
    • Recovery Champion
    • ★★★★
    @vicki

    It’s impossible for me not become politicised, as I continue to learn more about the bully Phama’s the Governments and the mess we’re in.
    I’m currently reading as much as I can about civilians vs the Pharma companies. It’s Scary. I read John La Carre’ ‘The Constant Gardener 10 years ago and was horrified by the terrorism that these Companies wage upon the vulnerable.

    *What about an online campaign hosted by “The Sum Of Us” or “Change” does anyone have any experience with any of this??
    I can investigate what is necessary to get it kickstarted.

    4 October 2015 at 7:09 am #1764
    Avatar photo2b
    • Guardian Angel
    • ★★★★★
    @2b

    I’ve got insurance in US but and I’m high end of F2, almost F3 and 65 and bastards want me to get sicker before they say MAYBE they will let me have medicine, Insurance company is definitely betting on the statistics that people like me will die before they have to pay for the meds.

    GT 2b; since 80’s, no prior tx, sofosbuvir and daclatasvir compounded from API’s at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. I feel GOOD!! I knew that I WOULD!””

    4 October 2015 at 8:59 am #1766
    WILSON1
    • Topics: 0
    • Replies: 18
    • Total: 18
    • Acolyte
    • ★★
    @wilson1

    Hi 2B, we were talking bringing meds into US.- It dawned on me that probly you and certainly I have gotten generic Viagra or Cialis online (course it was for someone else). Generic Viagra will not be legal for 5 more years! There is probly more Gen. than brand Viagra sold in US. Order it and comes in the mail. It is supposed to require a script. Is EXACTLY the same as as bringing in Sof-Dac.Is a nice thought.

    4 October 2015 at 12:00 pm #1773
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    It could work but as mentioned on our Supply Chain Integrity page the problem is that according to Forbes Up To 77 Percent Of Viagra Bought Online May Be Fake, And Possibly Dangerous, Research Shows

    Now that study was funded by Pfizer (who make Viagra) but you would have to be a rampant optimist to expect all mail order DAAs to be the real deal. The financial incentives to sell fakes are just way too strong.

    YMMV

    4 October 2015 at 12:35 pm #1775
    WILSON1
    • Topics: 0
    • Replies: 18
    • Total: 18
    • Acolyte
    • ★★
    @wilson1

    I totally agree with you Dr. It is important to be as well informed as possible. I believe the Buyers Club has an excellent supply chain and is proven. .I am curious what would be necessary to obtain these meds from the buyers club into the US? Mesochem turned out to become a proven source but there certainly are scams out there. I guess what I was saying is that having merchandise mailed into the US may not be the risk I feared it is..Both the phonies and the true do find their way in without much trouble. The buyers Club is premium as it is a proven route to go, is a God send to very many just as you are for making things happen. Thank you again Dr. Freeman! .

    4 October 2015 at 1:00 pm #1778
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad

    Greg wrote about a ‘worst case scenario’ getting his Indian Sof into the US here:

    http://hepatitisctreatment.homestead.com/greg-jefferys-blog.html

    It’s the 8th August entry.

    4 October 2015 at 2:38 pm #1784
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Vicki,

    Change.org had a petition targeting Gilead from a US perspective over a year ago, with close to 50,000 signatures:
    https://www.change.org/p/gilead-sciences-make-cure-for-hepatitis-c-affordable-for-the-world?recruiter=29648901&utm_source=share_petition&utm_medium=copylink#petition-letter

    And another from the Hep C Coalitian:
    http://www.petitionbuzz.com/PETITIONS/HEPC

    And one mentioned on Greg Jeffery’s blog:
    https://www.change.org/p/hon-susan-ley-prime-minister-malcolm-turnbull-help-sufferers-of-viral-hepatitis

    There are several others (including Avaaz) but they are out of date or focused on a particular country (like Canada or Mexico).

    I think it’s an issue that needs to be international, and target not just Gilead but all those involved in regulating pharmaceutical companies.

    The Trans Pacific Partnership currently under discussion favours Big Pharma, and getup.org has a petition opposing that:
    https://www.getup.org.au/campaigns/tpp/tpp/the-dirtiest-deal-youve-never-heard-of

    5 October 2015 at 1:31 am #1805
    Avatar photoVicki
    • Topics: 5
    • Replies: 40
    • Total: 45
    • Recovery Champion
    • ★★★★
    @vicki

    Thanks Joy,
    That’s very informative. I’m aware that The TTP is going to make Pharmaceuticals more expensive. I have signed and shard the Getup campaign.
    Best wishes
    Vicki

    5 October 2015 at 2:36 am #1806
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Today’s ABC news:

    “A dispute between Australia and the US over patent protections for pharmaceuticals is holding up the Trans-Pacific Partnership. Negotiations between the 12 countries in the US city of Atlanta have been extended for an extra day, as the US seeks to increase the length of time patents for new biologic drugs are protected.

    The move is being resisted by Australia and Japan.”

    http://www.abc.net.au/news/2015-10-04/pharmaceuticals-dispute-could-disrupt-tpp-andrew-robb-says/6826278

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